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Decision time.

This is a discussion on Decision time. within the Artificial Disc Replacement forums, part of the Spine Surgery Support category; 5 different surgeons, 5 different opinions. 2 level ddd, rupture at l4\l5, l5\s1 minor bulge. Both dessicated. Axial mechanical back ...

  1. #1
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    Default Decision time.

    5 different surgeons, 5 different opinions.

    2 level ddd, rupture at l4\l5, l5\s1 minor bulge. Both dessicated. Axial mechanical back pain only.

    Doc 1 (1 and a half years ago) - 2 level anterior fusion, artificial discs are rubbish.
    Answer - Makes no sense to dismiss artificial discs when alternative is fusion.

    Doc 2 - No endplate reaction therefore no surgery, here's a referral to pain management go eat tramadol and get a sedentary job.
    Answer - He freely admitted that you won't find anything in the literature about end plate reaction affecting outcomes. There's a reason for that, it's called anecdotal evidence. Plus, you know, he's a ****ing ****head.

    Doc 3 - Hybrid procedure, maverick prosthesis at l4/l5 plus anterior fusion at lowest level (worn facets)
    Answer - Reasonable option.

    Doc 4 (overseas option) - 2 level replacement with M6.
    Answer - Reasonable option. Facets concern me yet surgeons seem to think there is still enough cartliage left and has put discs in worse with good results. Who knows. Very good surgeon. M6-L discs show potential but have no meaningful clinical history as yet. Medical tourism.

    Doc 5 - L4/L5 prodisc disc replacement. Leave L5/s1 alone, wait for possibility of stem cell therapy in 5 years if needed. Part of 'spine centre' with good follow up care and post-op physio.
    Answer - WTF. This guy is a very good surgeon and a leader in his field so wtf is this stem cell rubbish. Been working on it for 16 years blah blah blah. When pressed on whether it is not best to do both levels once I'm opened up anyway, insists he feels it is better to do as little as needed. There is definitely more pathology at the upper level, but honestly that's the last thing I was expecting from him.

    He also claims regarding scar tissue that accessing another level that hasn't been touched anteriorly isn't a problem as the incision they use is so small.


    Ok internet doctors. Whaddya reckon? cos I'm in coin flipping mode pretty much, there are pros and cons to each.

  2. #2
    Super Moderator trkdoc714's Avatar
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    Default Re: Decision time.

    Hooch,

    I'm not a doctor, but it appears you're at the same crossroads I was at two years ago. From your comments, you have the greatest confidence in surgeons 3 and 4. If in your shoes, I'd drop the others out of the running. Your confidence in your surgeon is a huge component in a successful recovery.

    From personal experience, I had decided on a single ADR at L5/S1. The MRI taken just before leaving for Stenum showed L4/5 had degenerated severely since the CT Myleogram 8 months earlier. I chose to have the second Maverick instead of fusion at that level. In hindsight, I wonder if I would have experienced the same success if I'd decided on the hybrid, fusion at L5/S1 and ADR at L4/5. There have been a lot of success stories from hybrid surgeries at those two levels.

    I had the good fortune to meet my surgeon when he visited my city and got a physical exam, shared my symptoms, MRIs, XRays and CT Scan with him. I was impressed with his thorough explanations and diagnosis. He answered all of my questions with care and patience. When his laptop couldn't open the CT disc, he borrowed another computer to open and study it. I was confident and comfortable choosing him as my surgeon. My research had me comfortable in the Maverick as the level of success was high (Terry, Rhatzy, Todd, Morse and others). The M6 had not gotten CE approval yet, so I didn't do a lot of research on it. I don't know whether I'd have chosen it over the Maverick though. The simplicity of the Maverick was a deciding factor (as well as the success rate).

    I'm sure you'll find the same level of confidence before making your decision. You're done a great deal of quality research and decision making to date. You'll know when your options meet your needs and go forward with your decision. I'm sure you'll make the right choice for yourself.

    Good luck to you!

    Bob
    04/06 L5/S1 Rupture
    05/06 MRI shows DDD @ L2-S1
    06/06 Diskectomy/ Laminotomy L5/S1
    04/07 Recurrent Disc L5/S1
    4 Ortho and 1 Neuro Surgeon, 5 MRIs, 1 EGM, 1 Myleogram & 11 EDIs later:
    03/27/09 L4/5 & L5/S1 Maverick discs at Stenum (www.dr-ritter-lang.com)
    11/9/11 C6/7 Herniation with Nerve Impingement. Another journey begins.

  3. #3
    Moderator KBear's Avatar
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    Default Re: Decision time.

    Dr. Kathy recommends option 3. LOL I feel like I should have an honorary degree after all the medical crap I've been through. The facet issue would worry me, so I would be very concerned about putting an ADR at that level. I'm also a big believer in doing a hybrid at the lowest levels, since L5/S1 doesn't have a lot of movement anyway. Just my opinion, lots to consider....
    31 years old- 1/06- In wreck with 18 wheeler at 25 years old; 6/06- Head on collision on Interstate, both wrecks other drivers fault. Numerous MRI's, PT, chiropractic, acupuncture, TENS therapy, massage therapy, facet injections, epidural injections, Nerve study, Discogram, confirms pain in L4/5, IDET, decompression, Bi-lateral neurotomy L3/4/5, denied by insurance twice, in Active L clinical trial, had surgery March 17, 2009 in Miami, FL- received Active L disc at 29 years old. Pain and medication free as of October 2010!Mommy to Emma- 8 years, Ava- 6 years & had baby Eli after ADR, via c-section on March 25, 2011 , completely pain free still!

  4. #4
    Senior Member ajj1001's Avatar
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    Default Re: Decision time.

    sound like 3 and 4 are only options.

    as someone who had good facets pre 2 level adr and then suffered deterioration a few years later my opinion will very biased so no advice being given!!!

    hope you get there soon.
    Alison 46 year old female
    2012 Doing Rehab
    2011 Sept 3rd Op Removal of old instrumentation and PLIF L4/L5 - L5/S1 both adr in situ
    2010 May Discogram on L2/L3 & L3/L4
    2009 May 2nd Op Failed revision fusion on L5/S1 with Charite ADR in situ
    2008 Caudal epidural exacerbated nerve symptoms. Prolapse L2/L3
    2007 L5/S1 Facet deterioration
    2002 March 1st Op ADR Charite - L4/5, L5/S1
    2000 Disc prolapses L4/5, L5/S1

  5. #5
    Moderator Cindylou's Avatar
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    Default Re: Decision time.

    Kathy, I hear ya with "after all the medical crap I've been through" gig.....so Dr. Cindylou says options 3 and 4 seem like the only viable ones Hooch, and I'd be pushing for option 3 myself, if I really was a Dr. lol I sometimes wonder if 2 lumbar adr's along with 2 fusions beneath, would have served me better than my 3 lumbar adr's, and my ALIF at L6-S1, but that's hindsight. Who knows? Have to deal with the here and now. I agree with Bob, Hooch. You have done some remarkable research along this journey of yours, and it will all come together for you soon. Good luck, Cindylou
    • January 2000 MVA passenger, used jaws of life to retrieve me, neck injury and months of PT
    • June 2001 Bicycle accident, 2 compression fractures at T12/L1, Vertebroplasty Sept. 2001
    • April 2006 right hip, labral tear and repair
    • April 2007 3 level ProDisc @ L3/4, L4/5 & L5/6✷ ✷Lumbosacral transitional vertebra; Dr. Rudolph Bertagnoli
    • July 2, 2008 ALIF & Laminectomy @ L6/S1
    • July 30, 2008 re-opened 28 days later to remove bone cement that had leaked onto S1 nerve root
    • August 2008 Pulmonary embolism, double pneumonia, collapsed left lung, re-hospitalized 1 week
    • March 10, 2009 Right SI Joint Fusion
    • April 27, 2010 2nd right hip arthroscopy to remove adhesions and release psoas muscle
    • September 30, 2010 lumbar facet rhizotomy
    • December 9, 2010 12 bilateral lumbar trigger point and steroid injections
    • December 23, 2010 12 more bilateral trigger point injections w/o steroid
    • February 15, 2011 ESI bilaterally in lower lumbar...relief only for few days. Considering 1 more.
    Did Spinal Cord Stimulator trial from 5/11/11-5/17/11 with excellent results; Spinal Cord Stimulator surgery is Monday,
    July 18, 2011

  6. #6
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    Default Re: Decision time.

    Thanks to my esteemed colleagues! :P

    I slept on it, I'm going the overseas option. Basically because he's the surgeon I hold the most confidence in. He's open to doing a hybrid if I choose as well, reckons there isn't much in it. I really have no desire to go overseas, but on balance.. well ****, I dunno, but I'll just do it and get it done. He has a lot more experience than option 3, and stem cell guy well and truly lost me.

  7. #7
    Moderator KBear's Avatar
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    Default Re: Decision time.

    Hooch- I'm glad you made your decision, having confidence in your surgeon is a big deal and that will help you be more at ease with your decision. Any idea when you might be having surgery?
    31 years old- 1/06- In wreck with 18 wheeler at 25 years old; 6/06- Head on collision on Interstate, both wrecks other drivers fault. Numerous MRI's, PT, chiropractic, acupuncture, TENS therapy, massage therapy, facet injections, epidural injections, Nerve study, Discogram, confirms pain in L4/5, IDET, decompression, Bi-lateral neurotomy L3/4/5, denied by insurance twice, in Active L clinical trial, had surgery March 17, 2009 in Miami, FL- received Active L disc at 29 years old. Pain and medication free as of October 2010!Mommy to Emma- 8 years, Ava- 6 years & had baby Eli after ADR, via c-section on March 25, 2011 , completely pain free still!

  8. #8
    Founder / Administrator Justin's Avatar
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    Default Re: Decision time.

    Quote Originally Posted by Hooch View Post
    Thanks to my esteemed colleagues! :P

    I slept on it, I'm going the overseas option. Basically because he's the surgeon I hold the most confidence in. He's open to doing a hybrid if I choose as well, reckons there isn't much in it. I really have no desire to go overseas, but on balance.. well ****, I dunno, but I'll just do it and get it done. He has a lot more experience than option 3, and stem cell guy well and truly lost me.
    Hey Hooch, sorry for chiming in late. If I were in your shoes, I would pursue Doc 3's option.

    Quote Originally Posted by Hooch View Post

    Doc 3 - Hybrid procedure, maverick prosthesis at l4/l5 plus anterior fusion at lowest level (worn facets)
    Answer - Reasonable option.

    Doc 5 - L4/L5 prodisc disc replacement. Leave L5/s1 alone, wait for possibility of stem cell therapy in 5 years if needed. Part of 'spine centre' with good follow up care and post-op physio.
    Answer - WTF. This guy is a very good surgeon and a leader in his field so wtf is this stem cell rubbish. Been working on it for 16 years blah blah blah. When pressed on whether it is not best to do both levels once I'm opened up anyway, insists he feels it is better to do as little as needed. There is definitely more pathology at the upper level, but honestly that's the last thing I was expecting from him.

    He also claims regarding scar tissue that accessing another level that hasn't been touched anteriorly isn't a problem as the incision they use is so small.

    Ok internet doctors. Whaddya reckon? cos I'm in coin flipping mode pretty much, there are pros and cons to each.
    Can you refresh my memory about what L5/S1 "looks like" on MRI? Did you have diagnostic facet injections?

    Good luck moving forward, mate. (Note: my comments above are not considered medical advice.)

    Justin Averna
    Founder & President, Spine Patient Society™
    www.SpinePatientSociety.org
    A 501(c)(3) Tax-Exempt Nonprofit & Charitable Organization


    • 1994: Football Injury, Severe Hyperextension
    • 1997: Snow Skiing Injury
    • 3/7/1997: Laminotomy L4/L5
    • 1999 & 2003: Motor Vehicle Accidents (not at fault both times) --> Grade V Annular Tears L4/L5 & L5/L6
    • 11/15/2003: 2-Level ProDiscฎ L4/L5 & L5/L6*, *lumbosacral transitional vertebra --> Dr. Rudolf Bertagnoli
    • 4/2008: 4.5 years pain-free before "new" leg pain
    • 5/14/2009: Dynamic Stabilization System L4/L5, Dr. Rudolf Bertagnoli
    I'm here to help.
    Questions? Suggestions? Need help with registering, creating a signature, etc.?
    justin (at) spinepatientsociety.org


    Disclosure: I have no financial relationships with any surgeons, spine clinics, device manufacturers, pharmaceutical companies, hospitals, etc. -- the SPS Board of Directors serve without compensation.

  9. #9
    Moderator Cindylou's Avatar
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    Default Re: Decision time.

    Hooch, is that Nick Borelee (sp) in UK? (If yes, seems like we've only been hearing stellar things about him as well.) I'll bet you feel a weight off, just making your decision. CL
    • January 2000 MVA passenger, used jaws of life to retrieve me, neck injury and months of PT
    • June 2001 Bicycle accident, 2 compression fractures at T12/L1, Vertebroplasty Sept. 2001
    • April 2006 right hip, labral tear and repair
    • April 2007 3 level ProDisc @ L3/4, L4/5 & L5/6✷ ✷Lumbosacral transitional vertebra; Dr. Rudolph Bertagnoli
    • July 2, 2008 ALIF & Laminectomy @ L6/S1
    • July 30, 2008 re-opened 28 days later to remove bone cement that had leaked onto S1 nerve root
    • August 2008 Pulmonary embolism, double pneumonia, collapsed left lung, re-hospitalized 1 week
    • March 10, 2009 Right SI Joint Fusion
    • April 27, 2010 2nd right hip arthroscopy to remove adhesions and release psoas muscle
    • September 30, 2010 lumbar facet rhizotomy
    • December 9, 2010 12 bilateral lumbar trigger point and steroid injections
    • December 23, 2010 12 more bilateral trigger point injections w/o steroid
    • February 15, 2011 ESI bilaterally in lower lumbar...relief only for few days. Considering 1 more.
    Did Spinal Cord Stimulator trial from 5/11/11-5/17/11 with excellent results; Spinal Cord Stimulator surgery is Monday,
    July 18, 2011

  10. #10
    Senior Member ajj1001's Avatar
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    Default Re: Decision time.

    Glad you can move forward, its amazing how a sleep can make things clearer. Being confident in your surgeon is a crucial thing. Hope your plans come together quickly.
    Alison 46 year old female
    2012 Doing Rehab
    2011 Sept 3rd Op Removal of old instrumentation and PLIF L4/L5 - L5/S1 both adr in situ
    2010 May Discogram on L2/L3 & L3/L4
    2009 May 2nd Op Failed revision fusion on L5/S1 with Charite ADR in situ
    2008 Caudal epidural exacerbated nerve symptoms. Prolapse L2/L3
    2007 L5/S1 Facet deterioration
    2002 March 1st Op ADR Charite - L4/5, L5/S1
    2000 Disc prolapses L4/5, L5/S1

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