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New to SPS -- Investigating New Technologies

This is a discussion on New to SPS -- Investigating New Technologies within the Artificial Disc Replacement forums, part of the Spine Surgery Support category; Hello fellow back pain tolerators (sp?). I have suffered form low back pain since I was 17, felt my first ...

  1. #1
    Junior Member bphilhower's Avatar
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    Default New to SPS -- Investigating New Technologies

    Hello fellow back pain tolerators (sp?). I have suffered form low back pain since I was 17, felt my first "twinge" the morning of my 1st HS football playoff game. And of course I didn't say anything to anyone about it, I wasn't about to missed that game! Since then I have dealt with the effects of DDD in L3/4, L4/5 & L5/S1. These have progressively worsened over the past 20 years. I used to go a year or 2 without problems, then in the last 5-7 years it has been more like 3 out of 4 weeks I am dealing with some pain somewhere due to the discs. Investigated Microdiscectomy in summer of 2008 for L4/5 & L5/S1 herniations, but was told I was not a candidate because I didn't have enough radiating pain in my legs, mine typically just made my back and hips kill me and caused me to walk hunched over and crooked to the side.

    My story problems got worse in March of 09, I was helping some of my students move some equipmebt and I "ruptured" the L4/5 disc and had to have immediate surgery. Had that Microdiscectomy on both L4/5 & L5/S1 on 3/17/09, recovered and about 5 weeks post-op I was able to enjoy the most pain free 3-4 weeks I had in the past 6-10 years. Then, pain returned, this time down left leg (I never had problems with the left side before). MRI showed new herniations on left side of L4/5 & a return herniation on L5/S1. Steroid injection for left side relieved that pain, but as that disappeared, the right side flaired up and has been a problem for the past month and a half. I asked about doing another microdiscectomy and my doctor says I need fusion to fix the problem. He says another microdiscectomy would probably only work for a short time like before. Don't know what I should believe. I REALLY don't want to undergo a 2-level fusion.

    I refuse to accept that medical technology can create artificial limbs, artificial hearts, mechanical heart valves (of which my Dad has one), and other wonderful prosthesis, yet this ailment of back pain, that effects so many hundreds of thousands of people can only be treated with medical technology that is so old and out dated. I asked about artificial discs to a surgeon about 10 years ago and he didn't seem to give me much hope, but now I see that a couple have now been approved and more are in studies. I see that products like NuCore are being experimented with to replace the lost disc nucleus of DDD sufferers.

    So today I am in pain, and both hopeful and frustrated. Hopeful that FDA and insurance companies find these new technologies viable and approve them for use AND for insurance coverage, and frustrated that they are not quite there yet. I pray that I can hold off on surgery long enough that I can take advantage of the new devices to relieve my pain rather than fusion.

    I look forward to reading about other people's opinions, experiences and knowledge of new technologies as I continue to search for my magic elixir.

    Thanks for having this site,

    Brad Philhower

    Sorry, I haven't figured out how to put my back's medical history down here yet like the rest of you. I guess it would look like this...

    DDD L3/4, L4/5, L5/S1 since 1989
    Epidural Steroid Injection right side Aug. 2008
    Microdiscectomy 3/17/09 on L4/5, L5/S1
    Epidural Steroid Injection Left side L4/5 June, 2009
    Epidural Steroid Injection Right side L5/S1 July 21, 2009
    Epidural Steroid Injection Right side L5/S1 July 28, 2009

  2. #2
    Founder / Administrator Justin's Avatar
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    Welcome!

    Hi Brad,

    Welcome to our global community of support here at SPS!

    You have quite a spine history--I truly am sorry that you have suffered for so many years. Artificial disc replacement (ADR) surgery is a very promising technology for many Spine Patients. ADR is not a "cure all" by any means, but it has greatly improved the lives of many Spine Patients that I have spoken with over the last 7 years all around the world.

    Have a look around the SPS Forums. We are here to support you with any questions you may have. The SPS members that frequent these Forums have very unique spine histories, have an incredible wealth of knowledge and are an unparalleled source of support. If you need anything at all, send me a private message or an email.

    I wish you the very best.

    Justin Averna
    Founder & President, Spine Patient Society™
    www.SpinePatientSociety.org
    A 501(c)(3) Tax-Exempt Nonprofit & Charitable Organization


    • 1994: Football Injury, Severe Hyperextension
    • 1997: Snow Skiing Injury
    • 3/7/1997: Laminotomy L4/L5
    • 1999 & 2003: Motor Vehicle Accidents (not at fault both times) --> Grade V Annular Tears L4/L5 & L5/L6
    • 11/15/2003: 2-Level ProDisc® L4/L5 & L5/L6*, *lumbosacral transitional vertebra --> Dr. Rudolf Bertagnoli
    • 4/2008: 4.5 years pain-free before "new" leg pain
    • 5/14/2009: Dynamic Stabilization System L4/L5, Dr. Rudolf Bertagnoli
    I'm here to help.
    Questions? Suggestions? Need help with registering, creating a signature, etc.?
    justin (at) spinepatientsociety.org


    Disclosure: I have no financial relationships with any surgeons, spine clinics, device manufacturers, pharmaceutical companies, hospitals, etc. -- the SPS Board of Directors serve without compensation.

  3. #3
    Junior Member bphilhower's Avatar
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    Default

    Thanks! I have, and will continue to read about other people's experiences. I am learning so much here, and through other places online. It is kinda like a big treasure hunt :-)
    Brad Philhower
    GO BUCKS!
    DDD L3/4, L4/5, L5/S1 since 1989
    2008 (Aug.) Epidural Steroid Injection right side
    2009 (St. Patty's Day) Double Microdiscectomy on L4/5, L5/S1
    2009 (June) Epidural Steroid Injection Left side L4/5
    2009 (July 21) Epidural Steroid Injection Right side L5/S1
    2009 (July 28)Epidural Steroid Injection Right side L5/S1

  4. #4
    Senior Member Gilbert P's Avatar
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    Default

    Hello Brad
    I am sorry you are here we are here to help, listen and encourage you in any we can.

    Being a spiney is hard enough alone we have all been through many spine issues and try to keep moving forward to find a treatment , surgery anything to be pain free and regain some quality of our life back

    Welcome

    Gilbert P
    L5-S1 lam 1994
    L2 to L5 DDD
    L3 -L4 hern Dec 2007.
    L4-L5 Annular fissure with mild central stenosis and moderate facet hypertrophy.
    L5-S1 bilaterial neural foraminal narrowing with inferior effacement.
    L2-L3 Right-sided neural foraminal narrowing
    L3-L4 related to posterolateral hypertrophic spurs and facet hypertrophy.
    C3-C4 limited DDD
    15 injections Depo. P.T. 18 months 9 dose packs,
    Nerve Block Injections.4 ESI S1
    L5-S1 Foraminotomy 09
    L4-L5 Microdiscectomy 09 ReHerniation 4-2010
    Surgery 6-29-11 L4-L5-S1 Decompression Fusion L5-S1 and Coflex F implants


  5. #5
    Founder / Administrator Justin's Avatar
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    Default

    Quote Originally Posted by bphilhower View Post
    Thanks! I have, and will continue to read about other people's experiences. I am learning so much here, and through other places online. It is kinda like a big treasure hunt :-)
    It's really like a treasure hunt--there were so many golden nuggets of information that ultimately shaped me into a well-informed patient and allowed me to confidently move forward with my artificial disc replacement surgery. Good luck on your hunt!

    Justin Averna
    Founder & President, Spine Patient Society™
    www.SpinePatientSociety.org
    A 501(c)(3) Tax-Exempt Nonprofit & Charitable Organization


    • 1994: Football Injury, Severe Hyperextension
    • 1997: Snow Skiing Injury
    • 3/7/1997: Laminotomy L4/L5
    • 1999 & 2003: Motor Vehicle Accidents (not at fault both times) --> Grade V Annular Tears L4/L5 & L5/L6
    • 11/15/2003: 2-Level ProDisc® L4/L5 & L5/L6*, *lumbosacral transitional vertebra --> Dr. Rudolf Bertagnoli
    • 4/2008: 4.5 years pain-free before "new" leg pain
    • 5/14/2009: Dynamic Stabilization System L4/L5, Dr. Rudolf Bertagnoli
    I'm here to help.
    Questions? Suggestions? Need help with registering, creating a signature, etc.?
    justin (at) spinepatientsociety.org


    Disclosure: I have no financial relationships with any surgeons, spine clinics, device manufacturers, pharmaceutical companies, hospitals, etc. -- the SPS Board of Directors serve without compensation.

  6. #6
    Senior Member ajj1001's Avatar
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    Default Welcome

    Hope your searching gives you the answers you need. Best advice is to read, read and read some more!
    Alison 46 year old female
    2012 Doing Rehab
    2011 Sept 3rd Op Removal of old instrumentation and PLIF L4/L5 - L5/S1 both adr in situ
    2010 May Discogram on L2/L3 & L3/L4
    2009 May 2nd Op Failed revision fusion on L5/S1 with Charite ADR in situ
    2008 Caudal epidural exacerbated nerve symptoms. Prolapse L2/L3
    2007 L5/S1 Facet deterioration
    2002 March 1st Op ADR Charite - L4/5, L5/S1
    2000 Disc prolapses L4/5, L5/S1

  7. #7
    Senior Member Dave's Avatar
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    Brad,

    Glad you found us but sad for the reasons you had to. Good luck in your search and please ask a ton of questions. Spine patients today have many more options available to them then were around 10 years ago.

    Take care of yourself and we look forward in helping in any way we can.
    Dave

    Diagnosed with DDD in Nov, 2007. MRI, EMG
    C3/4 C4/5 C5/6 C6/7
    Surgery 06.04.08--C5/6 and C6/7 w/Prodisc
    C4/5 deterioration progressing quickly
    MRI on lumbar shows disc herniation at L5/S1, stenosis at L3/4, L4/5, spondylosis and DDD at L2 through S1 in July, 2009
    Nerve Root, Facet Injections and Epidural every 3 months. Ongoing treatment for continued degeneration.


  8. #8
    Senior Member New-disc's Avatar
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    Default

    ............
    ------------------------------------------------------------------------------------------
    * Stenum Hospital (Germany) Maverick disc implanted (10-19-07) L4-L5

    * To view my post-op video's click- http://www.youtube.com/ type ADR surgery into the space bar

    * Fusion of c5-c6 on (11-02-09) Boston, USA http://fusion-c5-c6.blogspot.com/
    ------------------------------------------------------------------------------------------

  9. #9
    Senior Member Katie's Avatar
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    Default

    I'm glad you found us

    Yes, if I had known all these people here, my journey would have been different. There is so much information through the personal experiences of our friends here.

    Welcome!
    Severe compression of spinal cord, flaval ligament, etc. at C4/5 & 5/6.
    Herniation and compression, at L3/4 to L5/S1 plus spondylosis at the latter level. Severe allergy to most metals.
    Three level surgery in Brazil with Dr. Luiz Pimenta on March 17/2010 using non-metal appliances. L5/S1-PEEK cage, ALIF; L4/5-PEEK cage, XLIF; C5/6-NuVasive NeoDisc. Three separate approaches, two minimally invasive. Currently minor residual back pain, from SI ligament and still overdoing things . Therapy and chiropractic treatments helping immensely. Gone from being almost bedridden to near normal activities including gardening. Life is gooooood!

  10. #10
    Moderator KBear's Avatar
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    Default

    glad you found us! This is such a wonderful resource for all of us spine pain sufferers. Ask any questions you have, there is no such thing as a dumb question, someone before has asked the same thing. If you post and don't get immediate responses, it's because we don't know; but be patient and someone will pop in with an answer or suggestion. The people on here are great and very helpful, supportive and truly understand what you are going through. Do your research and decide what is best for you. ADR is great; but is not for everyone.

    You had your surgery the same day I had my Activ-L implanted at L4/5, March 17, 2009.

    Nice to 'meet' you and hope to see you around.
    Kathy
    31 years old- 1/06- In wreck with 18 wheeler at 25 years old; 6/06- Head on collision on Interstate, both wrecks other drivers fault. Numerous MRI's, PT, chiropractic, acupuncture, TENS therapy, massage therapy, facet injections, epidural injections, Nerve study, Discogram, confirms pain in L4/5, IDET, decompression, Bi-lateral neurotomy L3/4/5, denied by insurance twice, in Active L clinical trial, had surgery March 17, 2009 in Miami, FL- received Active L disc at 29 years old. Pain and medication free as of October 2010!Mommy to Emma- 8 years, Ava- 6 years & had baby Eli after ADR, via c-section on March 25, 2011 , completely pain free still!

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