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Need some prayers

This is a discussion on Need some prayers within the The Lounge forums, part of the Social and Support Forums category; This is a little selfish, but I need your help. My wife, who was diagnosed with Multi-Centric Castleman's Disease, just ...

  1. #1
    Senior Member Dave's Avatar
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    Default Need some prayers

    This is a little selfish, but I need your help. My wife, who was diagnosed with Multi-Centric Castleman's Disease, just had another CT Scan, which showed several swollen nodes on both sides of her neck, and under her arms. Castleman's Disease is a very rare form of a lymphoma, or Non-Hodgkin's Lymphoma. Not all Castleman cases turn cancerous, but it is still always in the back of our minds.

    So, if you could keep her in your thoughts and prayers, I would be forever grateful.
    Dave

    Diagnosed with DDD in Nov, 2007. MRI, EMG
    C3/4 C4/5 C5/6 C6/7
    Surgery 06.04.08--C5/6 and C6/7 w/Prodisc
    C4/5 deterioration progressing quickly
    MRI on lumbar shows disc herniation at L5/S1, stenosis at L3/4, L4/5, spondylosis and DDD at L2 through S1 in July, 2009
    Nerve Root, Facet Injections and Epidural every 3 months. Ongoing treatment for continued degeneration.


  2. #2
    Senior Member daveinaustin's Avatar
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    She will be in my prayers. Keep us posted.

    -Dave
    Discectomy/Laminotomy, 1999
    L4-S1 DDD, 10/06
    Stalif Fusion L5-S1, 3/07
    Intrepid Fusion L4-L5, 7/08
    Increasing pain since solid fusing, 1/09
    Bilateral Transforaminal Injections 3/09
    Facet Joint Injections (L3-S1) 4/09
    RF Ablation (Medial Branch) 5/09
    CT Scan, MRI w/ contrast (no new info) 5/09
    Latest:
    - I wake up with no pain
    - Stand/sit for 15 mins., pinching pain begins
    - Pain at center, core L4-L5
    - Lying down, pulsing/throbbing pain for 2-3 hours
    - Taking 6-8 Norcos/day
    SCS Implant 8/31/09

  3. #3
    Senior Member ajj1001's Avatar
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    Not selfish at all, could I ask for her name? (it helps me to remember to pray having a name to what I am asking for)PM me if you don't want to put it up here. Please tell her that we are thinking of her.
    Alison 46 year old female
    2012 Doing Rehab
    2011 Sept 3rd Op Removal of old instrumentation and PLIF L4/L5 - L5/S1 both adr in situ
    2010 May Discogram on L2/L3 & L3/L4
    2009 May 2nd Op Failed revision fusion on L5/S1 with Charite ADR in situ
    2008 Caudal epidural exacerbated nerve symptoms. Prolapse L2/L3
    2007 L5/S1 Facet deterioration
    2002 March 1st Op ADR Charite - L4/5, L5/S1
    2000 Disc prolapses L4/5, L5/S1

  4. #4
    Senior Member Dave's Avatar
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    Thanks Dave and Alison. Her Name is Cyndie.
    Dave

    Diagnosed with DDD in Nov, 2007. MRI, EMG
    C3/4 C4/5 C5/6 C6/7
    Surgery 06.04.08--C5/6 and C6/7 w/Prodisc
    C4/5 deterioration progressing quickly
    MRI on lumbar shows disc herniation at L5/S1, stenosis at L3/4, L4/5, spondylosis and DDD at L2 through S1 in July, 2009
    Nerve Root, Facet Injections and Epidural every 3 months. Ongoing treatment for continued degeneration.


  5. #5
    Moderator KBear's Avatar
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    Dave- It's definitely not selfish to seek prayer for your wife. I will be praying for her, you and the family.
    31 years old- 1/06- In wreck with 18 wheeler at 25 years old; 6/06- Head on collision on Interstate, both wrecks other drivers fault. Numerous MRI's, PT, chiropractic, acupuncture, TENS therapy, massage therapy, facet injections, epidural injections, Nerve study, Discogram, confirms pain in L4/5, IDET, decompression, Bi-lateral neurotomy L3/4/5, denied by insurance twice, in Active L clinical trial, had surgery March 17, 2009 in Miami, FL- received Active L disc at 29 years old. Pain and medication free as of October 2010!Mommy to Emma- 8 years, Ava- 6 years & had baby Eli after ADR, via c-section on March 25, 2011 , completely pain free still!

  6. #6
    Founder / Administrator Justin's Avatar
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    Dave, I will be praying for you and Cyndie.

    Justin Averna
    Founder & President, Spine Patient Society™
    www.SpinePatientSociety.org
    A 501(c)(3) Tax-Exempt Nonprofit & Charitable Organization


    • 1994: Football Injury, Severe Hyperextension
    • 1997: Snow Skiing Injury
    • 3/7/1997: Laminotomy L4/L5
    • 1999 & 2003: Motor Vehicle Accidents (not at fault both times) --> Grade V Annular Tears L4/L5 & L5/L6
    • 11/15/2003: 2-Level ProDisc® L4/L5 & L5/L6*, *lumbosacral transitional vertebra --> Dr. Rudolf Bertagnoli
    • 4/2008: 4.5 years pain-free before "new" leg pain
    • 5/14/2009: Dynamic Stabilization System L4/L5, Dr. Rudolf Bertagnoli
    I'm here to help.
    Questions? Suggestions? Need help with registering, creating a signature, etc.?
    justin (at) spinepatientsociety.org


    Disclosure: I have no financial relationships with any surgeons, spine clinics, device manufacturers, pharmaceutical companies, hospitals, etc. -- the SPS Board of Directors serve without compensation.

  7. #7
    Moderator Cindylou's Avatar
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    Absolutely Dave. The power of prayer, especially in numbers, can be nothing short of miraculous. I won't forget her name either!
    • January 2000 MVA passenger, used jaws of life to retrieve me, neck injury and months of PT
    • June 2001 Bicycle accident, 2 compression fractures at T12/L1, Vertebroplasty Sept. 2001
    • April 2006 right hip, labral tear and repair
    • April 2007 3 level ProDisc @ L3/4, L4/5 & L5/6✷ ✷Lumbosacral transitional vertebra; Dr. Rudolph Bertagnoli
    • July 2, 2008 ALIF & Laminectomy @ L6/S1
    • July 30, 2008 re-opened 28 days later to remove bone cement that had leaked onto S1 nerve root
    • August 2008 Pulmonary embolism, double pneumonia, collapsed left lung, re-hospitalized 1 week
    • March 10, 2009 Right SI Joint Fusion
    • April 27, 2010 2nd right hip arthroscopy to remove adhesions and release psoas muscle
    • September 30, 2010 lumbar facet rhizotomy
    • December 9, 2010 12 bilateral lumbar trigger point and steroid injections
    • December 23, 2010 12 more bilateral trigger point injections w/o steroid
    • February 15, 2011 ESI bilaterally in lower lumbar...relief only for few days. Considering 1 more.
    Did Spinal Cord Stimulator trial from 5/11/11-5/17/11 with excellent results; Spinal Cord Stimulator surgery is Monday,
    July 18, 2011

  8. #8
    Senior Member Dave's Avatar
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    Thanks folks. I consider all of you true friends. It really means a lot to both of us.
    Dave

    Diagnosed with DDD in Nov, 2007. MRI, EMG
    C3/4 C4/5 C5/6 C6/7
    Surgery 06.04.08--C5/6 and C6/7 w/Prodisc
    C4/5 deterioration progressing quickly
    MRI on lumbar shows disc herniation at L5/S1, stenosis at L3/4, L4/5, spondylosis and DDD at L2 through S1 in July, 2009
    Nerve Root, Facet Injections and Epidural every 3 months. Ongoing treatment for continued degeneration.


  9. #9
    Member lbanis's Avatar
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    I will too - you are both in my prayers! Keep us posted.
    Lynn
    November 08 laminectomy L4L5 - complete drop foot
    June 2009 fusion at L4L5 - drop foot gone
    August 2009 cage slipped out
    August, 2009 fusion repair
    August 2011 L5/S1 fusion
    April 2012 scheduled for fusion to run from S1 - L1 with titanium rod

  10. #10
    Senior Member New-disc's Avatar
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    Dave,

    Thank you for sharing with us.... you'll both be in my thoughts and prayers.

    Todd
    ------------------------------------------------------------------------------------------
    * Stenum Hospital (Germany) Maverick disc implanted (10-19-07) L4-L5

    * To view my post-op video's click- http://www.youtube.com/ type ADR surgery into the space bar

    * Fusion of c5-c6 on (11-02-09) Boston, USA http://fusion-c5-c6.blogspot.com/
    ------------------------------------------------------------------------------------------

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