Hello fro Tarlov Patient in Ontario

[sherrijones]

HI,

My name is Sherri. I live in Ontario, Canada and I live with Symptomatic Tarlov Cyst Disease.

I have 3 three perineural cysts in my Cervical spine, and (had) one giant Tarlov Cyst in my Sacral Spine. Thankfully the sacral cyst is gone, but it's only been gone for almost two months and Tarlov Cyst Surgery recovery can go on for up to 2 years. 2 years is when the affected nerve roots, the roots that had been compressed and damaged by the cyst pressure, have achieved the most regeneration as they will ever reach. So it's a total of two years before I can truly gauge how successful the surgery actually was. So far I am thrilled... so far there are already major changes, but my limits and the ups and downs of recovery continue. This is the strangest surgical recovery I have ever experienced, or even heard of!

I have to admit though, I have never for one second regretted having surgery, and I am even more grateful for the support of AIMIS Spine and how they helped me achieve a goal that my own, Province and Country wouldn't.

It's strange how gifts can come from such strange places!!!

Are there any other Tarlov Patients on this site? Anyone know?

I look forward to talking and learning more.....

Sherri

Founder, writer and developer of Canadian Citizen Daily Battles
http://canadiancitizendailybattles.blogspot.com/

MVA July, 11, 2005 (Passenger)

MVA Jan 11, 2010, (Driver)

TARLOV CYST DISEASE SUFFERER

[Katie]

Hi Sherri and welcome! It is so nice to see another Canadian here, and especially one from Ontario.

I'm not familiar with your condition at all unfortunately and haven't had a chance to see your site/blog yet but will try tomorrow at a more decent hour (It's 3 am here now)

I'm not surprised at your lack of help from the province...I had a five year battle with them and it ended badly. I had to go to Brazil for surgery, but am glad in the end....the surgeon was exceedingly more experienced than any here and the hospital conditions far exceeded those here at home as far as cleanliness, care by the staff, etc. What/where is AIMIS Spine and what were they able to do for you? Do you plan on going back for more treatment? Sorry, so many questions! I'll try to get to your blog before asking any more

Again, welcome. You'll find a wealth of information here and some very kind people, some of the best I've met anywhere.