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hi new to forum. could use some support and advice

This is a discussion on hi new to forum. could use some support and advice within the New Member Introductions forums, part of the Spine Patient Society Lobby category; I have battled this in my head over & over. I have decided to go thru with the detox of ...

  1. #11
    cid
    cid is offline
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    Oct 2011
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    Default Re: hi new to forum. could use some support and advice

    I have battled this in my head over & over. I have decided to go thru with the detox of opiates and vallium. 2 years of this and I'm tired I don't want to live in pain. But will never know if it is hyperalgesia if I don't do this. I am very scared. Which is not helping matters. The only thing I have to lose is the chemicals. I had a long talk with my.Dr yesterday & I also have an appointment next thur with the pain clinic . My new Dr understands that there is pain & wants to try to treat it differently. I never inteded on becoming dependant on these meds. I really don't want to live my life around these pills anymore I'm sure most of you can understand this. I will keep you all updated when I find out more thank you all for your advice and support.

  2. #12
    Rob
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    Default Re: hi new to forum. could use some support and advice

    Hi cid,

    Just a thought, if you note the city and state you live in you may find a member that lives in the area that can recommend a doctor. I looked for the city in your profile but didn't see it, could have missed it.

    Regards,


    Rob
    • ~50 years old
    • Back pain for ~25 years
    • Spondylolisthesis Grade 2 L5/S1
    • DDD L4/L5 & L5/S1
    • Positive discogram L4/L5 & L5/S1
    • Prior PT & injections to no great avail
    • 360 degree fusion L4/L5/S1
    • Surgery March 15, 2010
    • ALIF with Posterior Stabilization Hardware
    • Emory University Orthepaedics & Spine Hospital (Atlanta, GA)
    • Currently doing really well - 85% improvement (Sept 2011)
    • Hardware removel (4-pedical screws & 2-rods) October 3, 2011

  3. #13
    Junior Member Badgolfer's Avatar
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    Jul 2011
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    Perth Austraila
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    Default Re: hi new to forum. could use some support and advice

    Quote Originally Posted by cid View Post
    I have battled this in my head over & over. I have decided to go thru with the detox of opiates and vallium. 2 years of this and I'm tired I don't want to live in pain.
    Cid,

    I just detoxed off a relatively mild dosage of OxyContin and found it to be very difficult . Kimberly has a thread on 'withdrawal' that is very good with lots of suggestions and comments made by the others here. Many of us have done this hard time.

    I would go Google and look at "opiates withdrawal". As a long time user of opiates you may need to ask your Dr's about a specific detox program and plan for a long term 'taper' program to go off the meds slowly- like a month or more. A 'cold turkey' change as a long time user could be very hard. I missed a week of work...and there was no way I could have worked...going cold turkey from just one 20mg oxycontin twice a day.

    So, I applaud the attempt to understand if your pain is possibly hyperalgesia and I assume there is no 'evidence' of the impingement or damage. But it is a big step and you need to be prepared.

    BTW, my wife has leg 'nerve pain' with no evidence of spinal impingement or damage. She finally got relief after 3 years with some nerve sleeve root injections, rhyzotomy, and norotriptyline. So I understand the how invisible pain can exist.

    Dan
    Severe numbness and weakness in right leg and left thigh w/difficulty walking or standing...Low Lumbar Pain levels
    2002 DDD & Stenosis Lamin'y L4/L5 & L5/S1 with great success
    Leg Probs resume 2010 - MRI & CT and NSR Inject (twice) & EPI & Rhyzhotomy
    2011 CT- Things looked bad - L3/4 bulge with facet jt degen mild - mod
    L4/5 disc vacuum & global bulge impinge right L4 nerve and bilat pars fracture. Grade 1-2 ant slip at L4 when bending from xrays not when erect
    L5/S1 DDD bulge with disc osteophyte and left L5 nerve impinge w/facet jt degen - autofusing in bad way
    14 Sep 2011 TLIF L4/L5/S1 w/BMP & own bone & DSS at L3/L4 to protect damaged disk
    Back to work full time at 5 weeks & Off pain meds at 6 weeks
    Still some numbness in legs but getting better

  4. #14
    Senior Member Kimberly's Avatar
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    Default Re: hi new to forum. could use some support and advice

    Cid,

    I also applaud your brave decision to see if your pain is caused by hyperalgesia. Like Dan, I also found that coming off my opiate medication was harder and more physically and emotionally trying than I had anticipated. There is a pretty steep learning curve with this and although I am anything but an experct, having gone through it once gives one some perspective. If you have ANY questions please feel free to fire away (or send me a PM). There were a handful of things I found to be helpful in the process that might be of use to you. Like Dan suggested, I would definitely recommend googling about opiate withdrawal and doing a bit of reading/research before you go through the process. This will give you some ideas about what to expect, what others have experienced and some things that might make the process a little bit easier. I was fairly studpid about it and just jumped in with both eyes closed. I don't really recommend that approach, but I still managed to be ok in the end.

    it isn't fun, but YOU CAN DO IT. You've been through a lot with your spine problems which by definition makes you a pretty tough cookie.

    Kimberly
    43 yr. old female with 11 and 13 year old kids.
    10+ years of chronic back pain (Severe R/L leg pain for past year)
    DDD at L3L4, L4L5, L5S1
    Herniations, foraminal stenosis and facet hypertrophy at all 3 levels
    Type II modic changes at L5S1
    Conservative measures not helpful (medication, NSAIDs, injections, PT, massage, chiro, lifestyle and ergonomic modifications)
    Microdiscectomy/Laminotomy (L5S1) 12/10 - Reherniated 6 weeks later.
    2-level fusion (ALIF) (L4-L5, L5-S1) 6/29/11

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