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I made an appt. w/ my pain management doc

This is a discussion on I made an appt. w/ my pain management doc within the Pain Management forums, part of the General Spine Discussion Forums category; Thanks Justin. Very much so....

  1. #51
    Moderator Cindylou's Avatar
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    Thanks Justin. Very much so.
    • January 2000 MVA passenger, used jaws of life to retrieve me, neck injury and months of PT
    • June 2001 Bicycle accident, 2 compression fractures at T12/L1, Vertebroplasty Sept. 2001
    • April 2006 right hip, labral tear and repair
    • April 2007 3 level ProDisc @ L3/4, L4/5 & L5/6✷ ✷Lumbosacral transitional vertebra; Dr. Rudolph Bertagnoli
    • July 2, 2008 ALIF & Laminectomy @ L6/S1
    • July 30, 2008 re-opened 28 days later to remove bone cement that had leaked onto S1 nerve root
    • August 2008 Pulmonary embolism, double pneumonia, collapsed left lung, re-hospitalized 1 week
    • March 10, 2009 Right SI Joint Fusion
    • April 27, 2010 2nd right hip arthroscopy to remove adhesions and release psoas muscle
    • September 30, 2010 lumbar facet rhizotomy
    • December 9, 2010 12 bilateral lumbar trigger point and steroid injections
    • December 23, 2010 12 more bilateral trigger point injections w/o steroid
    • February 15, 2011 ESI bilaterally in lower lumbar...relief only for few days. Considering 1 more.
    Did Spinal Cord Stimulator trial from 5/11/11-5/17/11 with excellent results; Spinal Cord Stimulator surgery is Monday,
    July 18, 2011

  2. #52
    Moderator Cindylou's Avatar
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    Default Another Pain Management Appt. today

    I go see my Pain Management Doctor in about an hour, so I will post how this appt. goes. Hopefully, I won't get Miss Crabbers again. I am not sure what we will be doing. Maybe another set of diagnostic injections for insurance purposes? Just don't know. I will ask him if he has filed/written the appeal letter yet. And I would like to get on more than the 2 Percocet a day, so I could get up and do more. I would take 1 always before I went down to the dock to fish. Then when the hurting outweighs the fun, go back up to the cabin to ice. It's just no way to live in my opinion. I'm supposed to be walking for 30 minutes 7 days a week, to ward off any future blood clots, and it's just not happening. I need a boost of steroids, stronger meds, I just don't know......will report back later today.
    • January 2000 MVA passenger, used jaws of life to retrieve me, neck injury and months of PT
    • June 2001 Bicycle accident, 2 compression fractures at T12/L1, Vertebroplasty Sept. 2001
    • April 2006 right hip, labral tear and repair
    • April 2007 3 level ProDisc @ L3/4, L4/5 & L5/6✷ ✷Lumbosacral transitional vertebra; Dr. Rudolph Bertagnoli
    • July 2, 2008 ALIF & Laminectomy @ L6/S1
    • July 30, 2008 re-opened 28 days later to remove bone cement that had leaked onto S1 nerve root
    • August 2008 Pulmonary embolism, double pneumonia, collapsed left lung, re-hospitalized 1 week
    • March 10, 2009 Right SI Joint Fusion
    • April 27, 2010 2nd right hip arthroscopy to remove adhesions and release psoas muscle
    • September 30, 2010 lumbar facet rhizotomy
    • December 9, 2010 12 bilateral lumbar trigger point and steroid injections
    • December 23, 2010 12 more bilateral trigger point injections w/o steroid
    • February 15, 2011 ESI bilaterally in lower lumbar...relief only for few days. Considering 1 more.
    Did Spinal Cord Stimulator trial from 5/11/11-5/17/11 with excellent results; Spinal Cord Stimulator surgery is Monday,
    July 18, 2011

  3. #53
    Senior Member ajj1001's Avatar
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    Hope it went well or at least better than before.
    Alison 46 year old female
    2012 Doing Rehab
    2011 Sept 3rd Op Removal of old instrumentation and PLIF L4/L5 - L5/S1 both adr in situ
    2010 May Discogram on L2/L3 & L3/L4
    2009 May 2nd Op Failed revision fusion on L5/S1 with Charite ADR in situ
    2008 Caudal epidural exacerbated nerve symptoms. Prolapse L2/L3
    2007 L5/S1 Facet deterioration
    2002 March 1st Op ADR Charite - L4/5, L5/S1
    2000 Disc prolapses L4/5, L5/S1

  4. #54
    Founder / Administrator Justin's Avatar
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    Good luck, CL.

    Justin Averna
    Founder & President, Spine Patient Society™
    www.SpinePatientSociety.org
    A 501(c)(3) Tax-Exempt Nonprofit & Charitable Organization


    • 1994: Football Injury, Severe Hyperextension
    • 1997: Snow Skiing Injury
    • 3/7/1997: Laminotomy L4/L5
    • 1999 & 2003: Motor Vehicle Accidents (not at fault both times) --> Grade V Annular Tears L4/L5 & L5/L6
    • 11/15/2003: 2-Level ProDiscฎ L4/L5 & L5/L6*, *lumbosacral transitional vertebra --> Dr. Rudolf Bertagnoli
    • 4/2008: 4.5 years pain-free before "new" leg pain
    • 5/14/2009: Dynamic Stabilization System L4/L5, Dr. Rudolf Bertagnoli
    I'm here to help.
    Questions? Suggestions? Need help with registering, creating a signature, etc.?
    justin (at) spinepatientsociety.org


    Disclosure: I have no financial relationships with any surgeons, spine clinics, device manufacturers, pharmaceutical companies, hospitals, etc. -- the SPS Board of Directors serve without compensation.

  5. #55
    Moderator Cindylou's Avatar
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    Default Thank-you Alison and Justin.

    First, let me say, I had a wonderful nurse yesterday before I met with my pain management doc. What a difference. After talking with my pain management doctor quite extensively, he suggested I give the Oxycontin another try, but to take it at bedtime. Then in the morning, take a Percocet, twice a day. I told him I was willing to try that again, especially since I noticed that I have been sleepy at the wheel even without the Oxycontin, for the past 3 weeks. We'll see if the dizziness returns or not. I'm going to go back and see him in just 2 weeks. He really does seem to be caring and wanting to reduce my pain levels. He already wrote the appeal letter, and said the office staff would call me as soon as they get word. He said he would follow-up with a phone call as well. Might help get the ball rolling. Out of curiosity, I asked him what the facet lumbar cauterizing would cost out of pocket, and he said around the $4,000-$5,000 ballpark. That's out of the question right now. So, that's it. Hopefully, my insurance provider will reverse their denial so I can get this cauterizing done. Soon.
    • January 2000 MVA passenger, used jaws of life to retrieve me, neck injury and months of PT
    • June 2001 Bicycle accident, 2 compression fractures at T12/L1, Vertebroplasty Sept. 2001
    • April 2006 right hip, labral tear and repair
    • April 2007 3 level ProDisc @ L3/4, L4/5 & L5/6✷ ✷Lumbosacral transitional vertebra; Dr. Rudolph Bertagnoli
    • July 2, 2008 ALIF & Laminectomy @ L6/S1
    • July 30, 2008 re-opened 28 days later to remove bone cement that had leaked onto S1 nerve root
    • August 2008 Pulmonary embolism, double pneumonia, collapsed left lung, re-hospitalized 1 week
    • March 10, 2009 Right SI Joint Fusion
    • April 27, 2010 2nd right hip arthroscopy to remove adhesions and release psoas muscle
    • September 30, 2010 lumbar facet rhizotomy
    • December 9, 2010 12 bilateral lumbar trigger point and steroid injections
    • December 23, 2010 12 more bilateral trigger point injections w/o steroid
    • February 15, 2011 ESI bilaterally in lower lumbar...relief only for few days. Considering 1 more.
    Did Spinal Cord Stimulator trial from 5/11/11-5/17/11 with excellent results; Spinal Cord Stimulator surgery is Monday,
    July 18, 2011

  6. #56
    Senior Member ajj1001's Avatar
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    Sounds like a good plan, glad that you found a good doctor & nurse. It makes such a difference when people listen to you and treat you with respect.
    Alison 46 year old female
    2012 Doing Rehab
    2011 Sept 3rd Op Removal of old instrumentation and PLIF L4/L5 - L5/S1 both adr in situ
    2010 May Discogram on L2/L3 & L3/L4
    2009 May 2nd Op Failed revision fusion on L5/S1 with Charite ADR in situ
    2008 Caudal epidural exacerbated nerve symptoms. Prolapse L2/L3
    2007 L5/S1 Facet deterioration
    2002 March 1st Op ADR Charite - L4/5, L5/S1
    2000 Disc prolapses L4/5, L5/S1

  7. #57
    Moderator KBear's Avatar
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    CL- So glad you had a good visit yesterday. Their attitude makes such a difference. I'm about to call my pm and get an appointment for a refill. I'm nervous to go, because they wanted me cut back and I haven't been able to do that. They gave me 3 fills last time, for 4 a day; but said I could take 6 a day and needed to get down to 4 a day. Well, I have been at 6 a day and had to fill early. I know they are going to give me a lecture; but I just don'e know what else to do. Like you said, laying around in pain is no way to live. If that's how it has to be, then I'd rather be gone than have to suffer. I have been able to get my exercise up. I have been either walking or biking with my daughter to school in the mornings. It's a mile there and a mile back, plus lots of hills, so definitely a good workout.
    31 years old- 1/06- In wreck with 18 wheeler at 25 years old; 6/06- Head on collision on Interstate, both wrecks other drivers fault. Numerous MRI's, PT, chiropractic, acupuncture, TENS therapy, massage therapy, facet injections, epidural injections, Nerve study, Discogram, confirms pain in L4/5, IDET, decompression, Bi-lateral neurotomy L3/4/5, denied by insurance twice, in Active L clinical trial, had surgery March 17, 2009 in Miami, FL- received Active L disc at 29 years old. Pain and medication free as of October 2010!Mommy to Emma- 8 years, Ava- 6 years & had baby Eli after ADR, via c-section on March 25, 2011 , completely pain free still!

  8. #58
    Moderator Cindylou's Avatar
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    So glad to hear that about the biking with your daughter Kathy. Good for you. Every little step helps. I have lost 3 1/2 pounds, which isn't much, but it's a start. Only another 13 to go!! Ugh.
    • January 2000 MVA passenger, used jaws of life to retrieve me, neck injury and months of PT
    • June 2001 Bicycle accident, 2 compression fractures at T12/L1, Vertebroplasty Sept. 2001
    • April 2006 right hip, labral tear and repair
    • April 2007 3 level ProDisc @ L3/4, L4/5 & L5/6✷ ✷Lumbosacral transitional vertebra; Dr. Rudolph Bertagnoli
    • July 2, 2008 ALIF & Laminectomy @ L6/S1
    • July 30, 2008 re-opened 28 days later to remove bone cement that had leaked onto S1 nerve root
    • August 2008 Pulmonary embolism, double pneumonia, collapsed left lung, re-hospitalized 1 week
    • March 10, 2009 Right SI Joint Fusion
    • April 27, 2010 2nd right hip arthroscopy to remove adhesions and release psoas muscle
    • September 30, 2010 lumbar facet rhizotomy
    • December 9, 2010 12 bilateral lumbar trigger point and steroid injections
    • December 23, 2010 12 more bilateral trigger point injections w/o steroid
    • February 15, 2011 ESI bilaterally in lower lumbar...relief only for few days. Considering 1 more.
    Did Spinal Cord Stimulator trial from 5/11/11-5/17/11 with excellent results; Spinal Cord Stimulator surgery is Monday,
    July 18, 2011

  9. #59
    Founder / Administrator Justin's Avatar
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    Quote Originally Posted by Cindylou View Post
    First, let me say, I had a wonderful nurse yesterday before I met with my pain management doc. What a difference. ... I'm going to go back and see him in just 2 weeks. He really does seem to be caring and wanting to reduce my pain levels. He already wrote the appeal letter, and said the office staff would call me as soon as they get word. He said he would follow-up with a phone call as well. Might help get the ball rolling. ... Hopefully, my insurance provider will reverse their denial so I can get this cauterizing done. Soon.


    CL, I'm so glad that your appointment went so well and your post above was jam packed with great news.

    Quote Originally Posted by Cindylou View Post
    So glad to hear that about the biking with your daughter Kathy. Good for you. Every little step helps. I have lost 3 1/2 pounds, which isn't much, but it's a start. Only another 13 to go!! Ugh.
    Congrats on the weight loss!

    Justin Averna
    Founder & President, Spine Patient Society™
    www.SpinePatientSociety.org
    A 501(c)(3) Tax-Exempt Nonprofit & Charitable Organization


    • 1994: Football Injury, Severe Hyperextension
    • 1997: Snow Skiing Injury
    • 3/7/1997: Laminotomy L4/L5
    • 1999 & 2003: Motor Vehicle Accidents (not at fault both times) --> Grade V Annular Tears L4/L5 & L5/L6
    • 11/15/2003: 2-Level ProDiscฎ L4/L5 & L5/L6*, *lumbosacral transitional vertebra --> Dr. Rudolf Bertagnoli
    • 4/2008: 4.5 years pain-free before "new" leg pain
    • 5/14/2009: Dynamic Stabilization System L4/L5, Dr. Rudolf Bertagnoli
    I'm here to help.
    Questions? Suggestions? Need help with registering, creating a signature, etc.?
    justin (at) spinepatientsociety.org


    Disclosure: I have no financial relationships with any surgeons, spine clinics, device manufacturers, pharmaceutical companies, hospitals, etc. -- the SPS Board of Directors serve without compensation.

  10. #60
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    Alexandria, VA
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    Kathy and CL..

    Here's to a collective hug that you have relief. I went to my GP the other day. He sits with me and listens when I have a meltdown because the surgeon could give a rat's ass about life after surgery and he will prescribe pain meds as I wait for new appts. at Hopkins and Georgetown.

    I'm convinced that a solution awaits us all......
    Patti

    Laminectomy L4-5 1980
    Fusion with instrumentation L4-5 2008

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