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Two weeks seems a long way off

This is a discussion on Two weeks seems a long way off within the Pain Management forums, part of the General Spine Discussion Forums category; Originally Posted by Justin The hardest part of all of this (in my opinion) is finding people that truly understand ...

  1. #11
    Senior Member ajj1001's Avatar
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    Quote Originally Posted by Justin View Post
    The hardest part of all of this (in my opinion) is finding people that truly understand how you feel living as a Spine Patient.


    ... and who don't keep asking when you are going to get better and understand its a long term condition. I know it is unlikely that I am gong to be totally pain free in this lifetime (I have faith for the next!).
    Alison 46 year old female
    2012 Doing Rehab
    2011 Sept 3rd Op Removal of old instrumentation and PLIF L4/L5 - L5/S1 both adr in situ
    2010 May Discogram on L2/L3 & L3/L4
    2009 May 2nd Op Failed revision fusion on L5/S1 with Charite ADR in situ
    2008 Caudal epidural exacerbated nerve symptoms. Prolapse L2/L3
    2007 L5/S1 Facet deterioration
    2002 March 1st Op ADR Charite - L4/5, L5/S1
    2000 Disc prolapses L4/5, L5/S1

  2. #12
    Moderator KBear's Avatar
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    Quote Originally Posted by ajj1001 View Post


    ... and who don't keep asking when you are going to get better and understand its a long term condition. I know it is unlikely that I am gong to be totally pain free in this lifetime (I have faith for the next!).
    And isn't that the truth. I really hate it when people ask how I'm doing. I always just say 'good'. Rather than going through the whole Q & A on my spine.
    31 years old- 1/06- In wreck with 18 wheeler at 25 years old; 6/06- Head on collision on Interstate, both wrecks other drivers fault. Numerous MRI's, PT, chiropractic, acupuncture, TENS therapy, massage therapy, facet injections, epidural injections, Nerve study, Discogram, confirms pain in L4/5, IDET, decompression, Bi-lateral neurotomy L3/4/5, denied by insurance twice, in Active L clinical trial, had surgery March 17, 2009 in Miami, FL- received Active L disc at 29 years old. Pain and medication free as of October 2010!Mommy to Emma- 8 years, Ava- 6 years & had baby Eli after ADR, via c-section on March 25, 2011 , completely pain free still!

  3. #13
    Founder / Administrator Justin's Avatar
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    Quote Originally Posted by ajj1001 View Post


    ... and who don't keep asking when you are going to get better and understand its a long term condition. I know it is unlikely that I am gong to be totally pain free in this lifetime (I have faith for the next!).
    Quote Originally Posted by KBear View Post
    And isn't that the truth. I really hate it when people ask how I'm doing. I always just say 'good'. Rather than going through the whole Q & A on my spine.
    +1.

    Justin Averna
    Founder & President, Spine Patient Society™
    www.SpinePatientSociety.org
    A 501(c)(3) Tax-Exempt Nonprofit & Charitable Organization


    • 1994: Football Injury, Severe Hyperextension
    • 1997: Snow Skiing Injury
    • 3/7/1997: Laminotomy L4/L5
    • 1999 & 2003: Motor Vehicle Accidents (not at fault both times) --> Grade V Annular Tears L4/L5 & L5/L6
    • 11/15/2003: 2-Level ProDisc® L4/L5 & L5/L6*, *lumbosacral transitional vertebra --> Dr. Rudolf Bertagnoli
    • 4/2008: 4.5 years pain-free before "new" leg pain
    • 5/14/2009: Dynamic Stabilization System L4/L5, Dr. Rudolf Bertagnoli
    I'm here to help.
    Questions? Suggestions? Need help with registering, creating a signature, etc.?
    justin (at) spinepatientsociety.org


    Disclosure: I have no financial relationships with any surgeons, spine clinics, device manufacturers, pharmaceutical companies, hospitals, etc. -- the SPS Board of Directors serve without compensation.

  4. #14
    Moderator Cindylou's Avatar
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    Yeah, totally agree. I always say "good" too, of course then if you leave some social engagement early, everyone wonders why. Running out of excuses.
    • January 2000 MVA passenger, used jaws of life to retrieve me, neck injury and months of PT
    • June 2001 Bicycle accident, 2 compression fractures at T12/L1, Vertebroplasty Sept. 2001
    • April 2006 right hip, labral tear and repair
    • April 2007 3 level ProDisc @ L3/4, L4/5 & L5/6✷ ✷Lumbosacral transitional vertebra; Dr. Rudolph Bertagnoli
    • July 2, 2008 ALIF & Laminectomy @ L6/S1
    • July 30, 2008 re-opened 28 days later to remove bone cement that had leaked onto S1 nerve root
    • August 2008 Pulmonary embolism, double pneumonia, collapsed left lung, re-hospitalized 1 week
    • March 10, 2009 Right SI Joint Fusion
    • April 27, 2010 2nd right hip arthroscopy to remove adhesions and release psoas muscle
    • September 30, 2010 lumbar facet rhizotomy
    • December 9, 2010 12 bilateral lumbar trigger point and steroid injections
    • December 23, 2010 12 more bilateral trigger point injections w/o steroid
    • February 15, 2011 ESI bilaterally in lower lumbar...relief only for few days. Considering 1 more.
    Did Spinal Cord Stimulator trial from 5/11/11-5/17/11 with excellent results; Spinal Cord Stimulator surgery is Monday,
    July 18, 2011

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