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Am so sore

This is a discussion on Am so sore within the Spine Patient Support: Body, Mind & Spirit forums, part of the Social and Support Forums category; I'm still struggling after being assessed/tortured* (*delete as appropriate) by the physio on Tuesday. I have got to go and ...

  1. #1
    Senior Member ajj1001's Avatar
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    Default Am so sore

    I'm still struggling after being assessed/tortured* (*delete as appropriate) by the physio on Tuesday. I have got to go and see the welfare rights woman soon to see why on earth they are saying I am fit to work. Not looking forward to trying to concentrate on speaking clearly when I'm in pain (the gabapentin gives me a time delay in remembering something and being able to say it!). Don't want to but need the money . Right go and get dressed woman. (talking to myself I know).
    Alison 46 year old female
    2011 Aug PLIF L4/L5 - L5/S1 both adr in situ
    2010 May - Discogram on L2/L3 & L3/L4, neither pain generators
    2009 May - Failed revision fusion on L5/S1 with Charite ADR in situ
    2008 Caudal epidural exacerbated nerve symptoms. Prolapse L2/L3
    2007 L5/S1 Facet deterioration
    Brilliant 5 years, no pain only minor motor problems and residual nerve damage
    2002 March - ADR Charite - L4/5, L5/S1
    2000 Disc prolapses L4/5, L5/S1

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    Senior Member Katie's Avatar
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    Ali, I'm so sorry that you have to jump through these hoops Why they feel the need to torture people like us like that I just don't understand. Do our medical records not speak for themselves???

    Are you not qualifying for some sort of disability payments? While they certainly aren't full pay, they do help make ends meet. I know that's personal information, so no need to answer.

    Not only do we have to suffer in pain, but financially as well, as if we enjoy being broke as well as hurting physically.

    ((((((Hugs))))))
    Severe compression of spinal cord, flaval ligament, etc. at C4/5 & 5/6.
    Herniation and compression, at L3/4 to L5/S1 plus spondylosis at the latter level. Severe allergy to most metals.
    Three level surgery in Brazil with Dr. Luiz Pimenta on March 17/2010 using non-metal appliances. L5/S1-PEEK cage, ALIF; L4/5-PEEK cage, XLIF; C5/6-NuVasive NeoDisc. Three separate approaches, two minimally invasive. Currently minor residual back pain, from SI ligament and still overdoing things . Therapy and chiropractic treatments helping immensely. Gone from being almost bedridden to near normal activities including gardening. Life is gooooood!

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    Moderator KBear's Avatar
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    Well said Katie.

    Alison- I have heard of pt (physical therapy) as being referred to as pain & torture (pt)! LOL
    I hope you get to feeling better today and that your meeting goes well . Sending you a virtual hug!
    31 years old-
    1/06- In wreck with 18 wheeler at 25 years old; 6/06- Head on collision on Interstate, both wrecks other drivers fault. Numerous MRI's, PT, chiropractic, acupuncture, TENS therapy, massage therapy, facet injections, epidural injections, Nerve study, Discogram, confirms pain in L4/5, IDET, decompression, Bi-lateral neurotomy L3/4/5, denied by insurance twice, in Active L clinical trial, had surgery March 17, 2009 in Miami, FL- received Active L disc at 29 years old. Pain and medication free as of October 2010!
    Mommy to Emma- 8 years, Ava- 5.5 years & had baby Eli after ADR, via c-section on March 25, 2011 , completely pain free still!

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    Moderator Terry Newton's Avatar
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    I wish you good luck in your appointment. They should have the ability to look at your entire history and see the gradual decline of your abilities justifying support. It sounds thoroughly American to deny people based on the minimal desire to pay for anything that might interfere with the profits of the few.

    I wish you good luck and support for what you are going threw.
    Terry Newton; Moderator

    1980 ruptured L4-L5
    1988 ruptured SI-L5
    1990 ruptured C5-C6
    1994 ruptured C6-C7
    1995 Hemi-Laminectomy surgery C5-C6, C6-C7 Mayo Clinic
    Bicycle Accident with a large dog in 2004
    Shoulder reconstruction surgery
    MRI, EMG, Facet Injections, Epidural Blocks, Lumbar Discogram.
    Stenum Hospital Surgery November 4, 2006
    Prestige Disc C5-C6, C6-C7
    Maverick Disc S1-L5, L4-L5

    I'm busy living my life after a successful 4-level ADR surgery with Dr. Ritter-Lang at Stenum Hospital in Germany. If you would like to contact me, please click the email icon under my SPS Member Profile, as I'm not on SPS daily.

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    Moderator KBear's Avatar
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    Quote Originally Posted by Terry Newton View Post
    I wish you good luck in your appointment. They should have the ability to look at your entire history and see the gradual decline of your abilities justifying support. It sounds thoroughly American to deny people based on the minimal desire to pay for anything that might interfere with the profits of the few.

    I wish you good luck and support for what you are going threw.
    Alison, you are in the UK right? I was reading to my daughter last night about schools around the world and we were on the UK section!

    Terry- Looks like this is a world phenomenon, as I have heard of the same thing in Canada & The UK.
    31 years old-
    1/06- In wreck with 18 wheeler at 25 years old; 6/06- Head on collision on Interstate, both wrecks other drivers fault. Numerous MRI's, PT, chiropractic, acupuncture, TENS therapy, massage therapy, facet injections, epidural injections, Nerve study, Discogram, confirms pain in L4/5, IDET, decompression, Bi-lateral neurotomy L3/4/5, denied by insurance twice, in Active L clinical trial, had surgery March 17, 2009 in Miami, FL- received Active L disc at 29 years old. Pain and medication free as of October 2010!
    Mommy to Emma- 8 years, Ava- 5.5 years & had baby Eli after ADR, via c-section on March 25, 2011 , completely pain free still!

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    Senior Member ajj1001's Avatar
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    I'm sure the physio didn't mean to hurt me, my thoracic spine and hip joints are so immobile that assessing me has moved muscles that don't move anymore. Sure it'll go off in a few days.

    The welfare service have agreed to represent me, I am currently assessed as being ok to work and am short 3 points of being incapacitated. On what we went through today I should have a further 50 points added to my assessment and she is amazed that they have denied me. I managed to keep it together pretty well apart from talking about how my condition limits me which is always pretty upsetting.

    I am now waiting on the gov getting back to me with appeal details and my ex employer about ill health retirement. It gets pretty overwhelming some days.
    Quote Originally Posted by Katie View Post
    Are you not qualifying for some sort of disability payments? While they certainly aren't full pay, they do help make ends meet. I know that's personal information, so no need to answer.
    Not getting anything at the moment apart from a small disability payment that I have had for the past few years (whilst I was working). They say I am able to work !


    Quote Originally Posted by KBear View Post
    Alison, you are in the UK right? I was reading to my daughter last night about schools around the world and we were on the UK section!
    Yup not far from Manchester United (not that we support them) What were you looking at?
    Last edited by ajj1001; 10-08-2009 at 11:20 AM.
    Alison 46 year old female
    2011 Aug PLIF L4/L5 - L5/S1 both adr in situ
    2010 May - Discogram on L2/L3 & L3/L4, neither pain generators
    2009 May - Failed revision fusion on L5/S1 with Charite ADR in situ
    2008 Caudal epidural exacerbated nerve symptoms. Prolapse L2/L3
    2007 L5/S1 Facet deterioration
    Brilliant 5 years, no pain only minor motor problems and residual nerve damage
    2002 March - ADR Charite - L4/5, L5/S1
    2000 Disc prolapses L4/5, L5/S1

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    A few years ago whilst on incapacity benefit I was judged fit for work whilst having treatment for my disc probs @ L1/2. My condition was deteriorating all the time & my GP filled in an appeal form to say I had significantly deteriorated since my DSS medical & the decision was reversed.

    Employment & support allowance seems to be replacing incapacity benefit but don't they have a similar appeal system?

    BTW I was told that if I was unable to attend the centre due to pain/disability they would do an assessment at my house. The reason why you claim the benefit is because of limited mobility. Maybe they don't offer that now but it's worth asking about.

    I used to have DSS medicals on a regular basis & I found it sooooo stressful. I felt like I was going to see the Gestapo & I couldn't afford to lose it. When filling in forms or answering questions I did so on a worst possible pain day. I don't have another one now 'till late 2010. Hope you get a good outcome .
    Last edited by dalhousie; 10-08-2009 at 12:17 PM.
    1993 Back pain age 29.
    1998-2001 DDD at L1/2. 10 admissions for discography/epidurals/facet injections/disc injections/RFA's.
    2005 ALIF at L1/2 with BMP & good result: pain free
    2007 DDD at L4/5 unresponsive to epidural. Discography: early degeneration, anular tear & bulge. Limited response to core strengthening.
    2009 ADR (activ L) L4/5.
    2011 Facet injections L4/5 & later on T10-L2.
    2011 (October) Epidurogram, epidural, nerve root injections & RFA's T10-L2.

  8. #8
    Moderator Cindylou's Avatar
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    Alison, hang in there. I know initially the p.t. can increase pain for a bit. Usually, not always mind you, this dissipates as your muscles warm up to being active again. And I know you know that. I also want to wish you good luck with your disability appt. It can be extremely difficult to put on a suit of armor for battle when the pain just grinds you down. I know I lose "my fight" when the going gets really rough. We're here for you!! You can do it!
    • January 2000 MVA passenger, used jaws of life to retrieve me, neck injury and months of PT
    • June 2001 Bicycle accident, 2 compression fractures at T12/L1, Vertebroplasty Sept. 2001
    • April 2006 right hip, labral tear and repair
    • April 2007 3 level ProDisc @ L3/4, L4/5 & L5/6✷ ✷Lumbosacral transitional vertebra; Dr. Rudolph Bertagnoli
    • July 2, 2008 ALIF & Laminectomy @ L6/S1
    • July 30, 2008 re-opened 28 days later to remove bone cement that had leaked onto S1 nerve root
    • August 2008 Pulmonary embolism, double pneumonia, collapsed left lung, re-hospitalized 1 week
    • March 10, 2009 Right SI Joint Fusion
    • April 27, 2010 2nd right hip arthroscopy to remove adhesions and release psoas muscle
    • September 30, 2010 lumbar facet rhizotomy
    • December 9, 2010 12 bilateral lumbar trigger point and steroid injections
    • December 23, 2010 12 more bilateral trigger point injections w/o steroid
    • February 15, 2011 ESI bilaterally in lower lumbar...relief only for few days. Considering 1 more.
    Did Spinal Cord Stimulator trial from 5/11/11-5/17/11 with excellent results; Spinal Cord Stimulator surgery is Monday,
    July 18, 2011

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    Moderator KBear's Avatar
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    Alison, I had just seen Terry's post about it being American to deny people benefits and was thinking you were in the UK, so thought maybe I missed something. Now, I see it by your name, duhh! (some days, ok most days, my brain no longer functions properly )

    Hope you feel better soon!
    31 years old-
    1/06- In wreck with 18 wheeler at 25 years old; 6/06- Head on collision on Interstate, both wrecks other drivers fault. Numerous MRI's, PT, chiropractic, acupuncture, TENS therapy, massage therapy, facet injections, epidural injections, Nerve study, Discogram, confirms pain in L4/5, IDET, decompression, Bi-lateral neurotomy L3/4/5, denied by insurance twice, in Active L clinical trial, had surgery March 17, 2009 in Miami, FL- received Active L disc at 29 years old. Pain and medication free as of October 2010!
    Mommy to Emma- 8 years, Ava- 5.5 years & had baby Eli after ADR, via c-section on March 25, 2011 , completely pain free still!

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    Senior Member ajj1001's Avatar
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    Quote Originally Posted by Ruth View Post
    Employment & support allowance seems to be replacing incapacity benefit but don't they have a similar appeal system?
    The appeal system does appear to be similar. I think all people are being moved over to ESA eventually.

    Quote Originally Posted by Ruth View Post
    BTW I was told that if I was unable to attend the centre due to pain/disability they would do an assessment at my house. The reason why you claim the benefit is because of limited mobility. Maybe they don't offer that now but it's worth asking about.

    I used to have DSS medicals on a regular basis & I found it sooooo stressful. I felt like I was going to see the Gestapo & I couldn't afford to lose it. When filling in forms or answering questions I did so on a worst possible pain day. I don't have another one now 'till late 2010. Hope you get a good outcome .
    They came to the house to do the assessment as it was before I was driving and what was written in the report was completely different to what he was told then?

    I have been given DLA indefinitely since my recent deterioration. Left hand doesn't know what the right is doing. At least the welfare rights woman was appalled and seemed pretty confident that a reasonably favourable panel would given me it. Its not much but it all adds up.
    Alison 46 year old female
    2011 Aug PLIF L4/L5 - L5/S1 both adr in situ
    2010 May - Discogram on L2/L3 & L3/L4, neither pain generators
    2009 May - Failed revision fusion on L5/S1 with Charite ADR in situ
    2008 Caudal epidural exacerbated nerve symptoms. Prolapse L2/L3
    2007 L5/S1 Facet deterioration
    Brilliant 5 years, no pain only minor motor problems and residual nerve damage
    2002 March - ADR Charite - L4/5, L5/S1
    2000 Disc prolapses L4/5, L5/S1

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