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I don't get it!

This is a discussion on I don't get it! within the Spine Patient Support: Body, Mind & Spirit forums, part of the Social and Support Forums category; It's a bit tricky when there is no clear nerve impingement. You can get nerve symptoms from chemical irritation of ...

  1. #11
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    Default Re: I don't get it!

    It's a bit tricky when there is no clear nerve impingement. You can get nerve symptoms from chemical irritation of the nerve root from leaking inflammatory contents of the disc. This bloke had it, Doug, www.chirogeek.com He's interesting as he elected for a microdiscectomy which shouldn't have been offered in his case, then never had fusion or disc replacement. After a few years the sciatica relieved, then the back pain relieved, but he has some significant functional limitations. But it's not a given symptoms will resolve.

    The docs may not really know what's causing the leg pain, and offer fusion or disc replacement as the next and final step. The chances are pretty good for a reduction in leg pain post disc replacement\fusion.

    Anyway you are actively chasing opinions which puts you ahead of the pack, it's going to be a rough year at least, but theres plenty of hope for improvement.

  2. #12
    Member Vanessa's Avatar
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    Default Re: I don't get it!

    Well, I have my appointment today with my pain doctor. I have written down all my concerns and I'm sure we will spend a lot of time addressing each one of them. I had an eye opener yesterday when I was completing some of my disablility forms from social security. After looking at everything, I have cut out so many of the things I love to do, because of the pain. Seeing this, makes me want to scream. If this doctor simply wants to put me on meds to help "manage" the pain, I will take it for a while until I can get in to see another specialist. I just can't continue this way.

    I will keep you all posted.
    ~ Vanessa ~ Living my life one Dr. Visit at a time
    • Work injury while working as a Veterinary Assistant 1998 - herniated lumbar discs @ L4, L5, thoracic L2, L3
    • PT, LSI, Tens Unit from 1998 - 2009
    • 6/2010 severe leg pain down right leg
    • Lyrica, Neurontin, Cymbalta, Morphine etc.
    • MRI - DDD multiple levels, nerve root narrowing @ L4, L5
    • 9/8/2010 Laminotomy & Discectomy @ L4, L5-S1
    • 11/3/2010 Repeat MRI shows collapse of L4, L5 (continued nerve pain)

  3. #13
    Senior Member Jack-of-all-trades's Avatar
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    Default Re: I don't get it!

    Quote Originally Posted by Vanessa View Post
    Well, I have my appointment today with my pain doctor. I have written down all my concerns and I'm sure we will spend a lot of time addressing each one of them. I had an eye opener yesterday when I was completing some of my disablility forms from social security. After looking at everything, I have cut out so many of the things I love to do, because of the pain. Seeing this, makes me want to scream. If this doctor simply wants to put me on meds to help "manage" the pain, I will take it for a while until I can get in to see another specialist. I just can't continue this way.

    I will keep you all posted.

    I don't want to throw cold water on your parade but I wouldn't wait on Social Security to get your pain taken care of. A plumber friend of mine had a cardiac stent and applied for SS disability. He said it typically takes 15 months to 2 years to get it. He said everyone gets turned down the first time or two but you need to keep appealing. His said he finally got a lawyer to handle his case. The lawyer usually gets something like 20% of whatever back fees you get from the day you first apply. He felt like his lawyer didn't work on his case immediately but waited until he could get a decent percentage to make it worth his time. I doubt this but at any rate it takes a long time to get any benefits.
    Last edited by Jack-of-all-trades; 11-12-2010 at 06:38 PM.
    Low back pain became somewhat dehabilitating in 2005
    Have had 11 steroid injections, IDET, Trial for nerve stimulator, PT, chiropractic trial, practically every med known to mankind. Discogram indicated three diseased levels with L5-S1 being the most likely pain generator. Post minimally invasive PLIF with internal fixation (titanium) on 12-28-09 of L5-S1. Doing better than expected. Last opioid 7/9/10. Five months pain free, then my neck turned against me. MRI on 12/1/10-- disease at C2 to C7. Only surgical alternative is to fuse entire C-spine. Diagnosed now with Aggressive Relapsing-Remitting Multiple Sclerosis with cord & brainstem active lesions

  4. #14
    Moderator KBear's Avatar
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    Default Re: I don't get it!

    I second Jack. I applied, was denied, appealed, denied and so on. I went in front of a judge with my lawyer, basically it was in my favor, but my lawyer was supposed to get some of my medical paperwork that we had been unable to get (the judge even said he would suponea it if need be). My lawyer dropped the ball and never got it, thus I was denied. By that point, and after fighting SS disability for years, I was better, so didn't bother appealing again.
    31 years old- 1/06- In wreck with 18 wheeler at 25 years old; 6/06- Head on collision on Interstate, both wrecks other drivers fault. Numerous MRI's, PT, chiropractic, acupuncture, TENS therapy, massage therapy, facet injections, epidural injections, Nerve study, Discogram, confirms pain in L4/5, IDET, decompression, Bi-lateral neurotomy L3/4/5, denied by insurance twice, in Active L clinical trial, had surgery March 17, 2009 in Miami, FL- received Active L disc at 29 years old. Pain and medication free as of October 2010!Mommy to Emma- 8 years, Ava- 6 years & had baby Eli after ADR, via c-section on March 25, 2011 , completely pain free still!

  5. #15
    Member Vanessa's Avatar
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    Default Re: I don't get it!

    Believe me, I'm not disillusioned as to how Social Security pokes thier butts. They have told me it could take up to 18 months for me to see anything IF I get approved. I know that I'll get denied the first, second time, but I am going to keep fighting this as hard as I can. I want to work, I wish I could work. Given the nature of my situation, if I did even remotely think about going back to where I want, my profession...it's a given I will blow what is left of my remaining back. I'm treading along with this by myself, and I'll just keep going through the motions as long as I need to while waiting for all this paperwork to go through.

    I also went to the doctor today for my pain. According to this doctor, I have a very large amount of scar tissue that has invaded nerve space and is "tethering" with the nerve in my leg. He said this can happen in people with "olive" complexion skin etc. I don't know about that, but the symptoms he is describing about tethering are right on. At this point, all he said he could do is help manage the pain until he becomes certified to do some sort of procedure to remove the scar tissue from my nerve. That should be about 3 months. So, he put me on Morphine long acting 2x daily, Vicodin 3x daily and 300mg Neurontin 3x daily. I am going to have a transforamanal injection on wednesday and he will repeat once a month for the next two months. After the 3 month mark, if he can do that procedure he will. If it is ineffective, we will look at stimulators and nerve ablation.
    ~ Vanessa ~ Living my life one Dr. Visit at a time
    • Work injury while working as a Veterinary Assistant 1998 - herniated lumbar discs @ L4, L5, thoracic L2, L3
    • PT, LSI, Tens Unit from 1998 - 2009
    • 6/2010 severe leg pain down right leg
    • Lyrica, Neurontin, Cymbalta, Morphine etc.
    • MRI - DDD multiple levels, nerve root narrowing @ L4, L5
    • 9/8/2010 Laminotomy & Discectomy @ L4, L5-S1
    • 11/3/2010 Repeat MRI shows collapse of L4, L5 (continued nerve pain)

  6. #16
    Founder / Administrator Justin's Avatar
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    Default Re: I don't get it!

    Quote Originally Posted by Vanessa View Post
    Believe me, I'm not disillusioned as to how Social Security pokes thier butts. They have told me it could take up to 18 months for me to see anything IF I get approved. I know that I'll get denied the first, second time, but I am going to keep fighting this as hard as I can. I want to work, I wish I could work. Given the nature of my situation, if I did even remotely think about going back to where I want, my profession...it's a given I will blow what is left of my remaining back. I'm treading along with this by myself, and I'll just keep going through the motions as long as I need to while waiting for all this paperwork to go through.
    Vanessa, that's the key: keep fighting. As mentioned above, they usually deny everyone the first time around.

    Quote Originally Posted by Vanessa View Post
    I also went to the doctor today for my pain. According to this doctor, I have a very large amount of scar tissue that has invaded nerve space and is "tethering" with the nerve in my leg. He said this can happen in people with "olive" complexion skin etc. I don't know about that, but the symptoms he is describing about tethering are right on. At this point, all he said he could do is help manage the pain until he becomes certified to do some sort of procedure to remove the scar tissue from my nerve. That should be about 3 months. So, he put me on Morphine long acting 2x daily, Vicodin 3x daily and 300mg Neurontin 3x daily. I am going to have a transforamanal injection on wednesday and he will repeat once a month for the next two months. After the 3 month mark, if he can do that procedure he will. If it is ineffective, we will look at stimulators and nerve ablation.
    I'm glad that you are on something for the pain. I hope the lumbar transforaminal injections help. Just a heads up--sometimes the first injection does not work or actually increases one's pain. However, sometimes the first injection works wonders and the subsequent injections are then canceled.

    I wish you the very best with everything.

    Justin Averna
    Founder & President, Spine Patient Society™
    www.SpinePatientSociety.org
    A 501(c)(3) Tax-Exempt Nonprofit & Charitable Organization


    • 1994: Football Injury, Severe Hyperextension
    • 1997: Snow Skiing Injury
    • 3/7/1997: Laminotomy L4/L5
    • 1999 & 2003: Motor Vehicle Accidents (not at fault both times) --> Grade V Annular Tears L4/L5 & L5/L6
    • 11/15/2003: 2-Level ProDisc® L4/L5 & L5/L6*, *lumbosacral transitional vertebra --> Dr. Rudolf Bertagnoli
    • 4/2008: 4.5 years pain-free before "new" leg pain
    • 5/14/2009: Dynamic Stabilization System L4/L5, Dr. Rudolf Bertagnoli
    I'm here to help.
    Questions? Suggestions? Need help with registering, creating a signature, etc.?
    justin (at) spinepatientsociety.org


    Disclosure: I have no financial relationships with any surgeons, spine clinics, device manufacturers, pharmaceutical companies, hospitals, etc. -- the SPS Board of Directors serve without compensation.

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