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Why I haven't been around much lately

This is a discussion on Why I haven't been around much lately within the Spine Patient Support: Body, Mind & Spirit forums, part of the Social and Support Forums category; It is recommended with all dental work Kathy. :thumpup: Better safe than sorry....

  1. #11
    Moderator Cindylou's Avatar
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    Default Re: Why I haven't been around much lately

    It is recommended with all dental work Kathy. :thumpup: Better safe than sorry.
    • January 2000 MVA passenger, used jaws of life to retrieve me, neck injury and months of PT
    • June 2001 Bicycle accident, 2 compression fractures at T12/L1, Vertebroplasty Sept. 2001
    • April 2006 right hip, labral tear and repair
    • April 2007 3 level ProDisc @ L3/4, L4/5 & L5/6✷ ✷Lumbosacral transitional vertebra; Dr. Rudolph Bertagnoli
    • July 2, 2008 ALIF & Laminectomy @ L6/S1
    • July 30, 2008 re-opened 28 days later to remove bone cement that had leaked onto S1 nerve root
    • August 2008 Pulmonary embolism, double pneumonia, collapsed left lung, re-hospitalized 1 week
    • March 10, 2009 Right SI Joint Fusion
    • April 27, 2010 2nd right hip arthroscopy to remove adhesions and release psoas muscle
    • September 30, 2010 lumbar facet rhizotomy
    • December 9, 2010 12 bilateral lumbar trigger point and steroid injections
    • December 23, 2010 12 more bilateral trigger point injections w/o steroid
    • February 15, 2011 ESI bilaterally in lower lumbar...relief only for few days. Considering 1 more.
    Did Spinal Cord Stimulator trial from 5/11/11-5/17/11 with excellent results; Spinal Cord Stimulator surgery is Monday,
    July 18, 2011

  2. #12
    Senior Member Katie's Avatar
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    Default Re: Why I haven't been around much lately

    Thanks CL. Kathy, yes, you need it every time you have any dental work. When they work in the mouth, there is always some irritation of the tissue which will allow the bacteria in the mouth to get into the blood stream. For whatever reason, it then migrates to the site of any foreign body in us. Once it settles in there, it is very difficult to get rid of it all.

    My dentist looked up the very latest research on this before he called, and said while it was a bit controversial in the past, it is now highly recommended that it be done.

    It may be way off course, but I believe that one of our other members had revision surgery several months after the first because of an infection at the site of the artificial discs, which caused subsidence. I'm a bit fuzzy on all the details. But I wonder if there is a chance that the bacteria got into his system from the above source, instead of from the initial surgery as they suspected. Just musing.......

    Jack, I'm beginning to worry....how are you doing?
    Severe compression of spinal cord, flaval ligament, etc. at C4/5 & 5/6.
    Herniation and compression, at L3/4 to L5/S1 plus spondylosis at the latter level. Severe allergy to most metals.
    Three level surgery in Brazil with Dr. Luiz Pimenta on March 17/2010 using non-metal appliances. L5/S1-PEEK cage, ALIF; L4/5-PEEK cage, XLIF; C5/6-NuVasive NeoDisc. Three separate approaches, two minimally invasive. Currently minor residual back pain, from SI ligament and still overdoing things . Therapy and chiropractic treatments helping immensely. Gone from being almost bedridden to near normal activities including gardening. Life is gooooood!

  3. #13
    Senior Member Jack-of-all-trades's Avatar
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    Default Re: Why I haven't been around much lately

    Quote Originally Posted by Katie View Post
    Thanks CL. Kathy, yes, you need it every time you have any dental work. When they work in the mouth, there is always some irritation of the tissue which will allow the bacteria in the mouth to get into the blood stream. For whatever reason, it then migrates to the site of any foreign body in us. Once it settles in there, it is very difficult to get rid of it all.

    My dentist looked up the very latest research on this before he called, and said while it was a bit controversial in the past, it is now highly recommended that it be done.

    It may be way off course, but I believe that one of our other members had revision surgery several months after the first because of an infection at the site of the artificial discs, which caused subsidence. I'm a bit fuzzy on all the details. But I wonder if there is a chance that the bacteria got into his system from the above source, instead of from the initial surgery as they suspected. Just musing.......

    Jack, I'm beginning to worry....how are you doing?
    Sorry again about the late response. I manage to spend a few minutes a day on the internet but not like before. I'm still about the same. My F/P doc checked my pee again after a week on Cipro (an antibiotic) and it was OK. There may be multiple infection sites in my urinary tract, one being the prostate. Prostate infection tends to be harder to clear up from a bacterial infection. This could be the cause of the high PSA. I never thought I would hope for a prostate infection.

    I asked my F/P about the possibility of infection at my fusion site since titanium plates and screws were used. He was of the opinion that if infected, I would have a lot of back pain. I don't know if this is correct or not.

    I have a consult with a urologist on 7-13. It sure seems like a long time away. I'm sure everyone here knows how slow the system seems to move when you really want it to move fast.
    Low back pain became somewhat dehabilitating in 2005
    Have had 11 steroid injections, IDET, Trial for nerve stimulator, PT, chiropractic trial, practically every med known to mankind. Discogram indicated three diseased levels with L5-S1 being the most likely pain generator. Post minimally invasive PLIF with internal fixation (titanium) on 12-28-09 of L5-S1. Doing better than expected. Last opioid 7/9/10. Five months pain free, then my neck turned against me. MRI on 12/1/10-- disease at C2 to C7. Only surgical alternative is to fuse entire C-spine. Diagnosed now with Aggressive Relapsing-Remitting Multiple Sclerosis with cord & brainstem active lesions

  4. #14
    Founder / Administrator Justin's Avatar
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    Default Re: Why I haven't been around much lately

    Quote Originally Posted by Jack-of-all-trades View Post
    Sorry again about the late response. I manage to spend a few minutes a day on the internet but not like before. I'm still about the same. My F/P doc checked my pee again after a week on Cipro (an antibiotic) and it was OK. There may be multiple infection sites in my urinary tract, one being the prostate. Prostate infection tends to be harder to clear up from a bacterial infection. This could be the cause of the high PSA. I never thought I would hope for a prostate infection.

    I asked my F/P about the possibility of infection at my fusion site since titanium plates and screws were used. He was of the opinion that if infected, I would have a lot of back pain. I don't know if this is correct or not.

    I have a consult with a urologist on 7-13. It sure seems like a long time away. I'm sure everyone here knows how slow the system seems to move when you really want it to move fast.
    What did your last UA show? I bet you are (somewhat) relieved that things are looking infectious.

    Justin Averna
    Founder & President, Spine Patient Society™
    www.SpinePatientSociety.org
    A 501(c)(3) Tax-Exempt Nonprofit & Charitable Organization

    • 1994: Football Injury, Severe Hyperextension
    • 1997: Snow Skiing Injury
    • 3/7/1997, 17 years old: Laminotomy L4/L5
    • 1999 & 2003: Motor Vehicle Accidents (not at fault both times) --> Grade V Annular Tears L4/L5 & L5/L6
    • 11/15/2003, 23 years old: 2-Level ProDisc® L4/L5 & L5/L6*, *lumbosacral transitional vertebra --> Dr. Rudolf Bertagnoli
    • 4/2008: 4.5 years pain-free before "new" leg pain
    • 5/14/2009, 29 years old: Dynamic Stabilization System L4/L5, Dr. Rudolf Bertagnoli
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  5. #15
    Senior Member Katie's Avatar
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    Default Re: Why I haven't been around much lately

    Jack, I'm sorry things are not going well.

    When I had my last few UT infections, I was given a little purple pill for pain (along with the antibiotics) and it worked wonders. Sorry, I can't remember the name of it right now.

    Is there any way to find out how the symptoms of an infection settling on an appliance would present themselves? I'll try a Google search tomorrow. Here's hoping you start to feel better before that date comes around.
    Severe compression of spinal cord, flaval ligament, etc. at C4/5 & 5/6.
    Herniation and compression, at L3/4 to L5/S1 plus spondylosis at the latter level. Severe allergy to most metals.
    Three level surgery in Brazil with Dr. Luiz Pimenta on March 17/2010 using non-metal appliances. L5/S1-PEEK cage, ALIF; L4/5-PEEK cage, XLIF; C5/6-NuVasive NeoDisc. Three separate approaches, two minimally invasive. Currently minor residual back pain, from SI ligament and still overdoing things . Therapy and chiropractic treatments helping immensely. Gone from being almost bedridden to near normal activities including gardening. Life is gooooood!

  6. #16
    Senior Member Jack-of-all-trades's Avatar
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    Default Re: Why I haven't been around much lately

    Quote Originally Posted by Justin View Post
    What did your last UA show? I bet you are (somewhat) relieved that things are looking infectious.
    The first one had white cells in clumps on an unspun sample with RBCs, one stone, and calcium oxalate crystals without any casts present. I need to get a copy to see if there was any protein or the like assuming they still do dipsticks for the like at my docs office. The second one I haven't gotten the report sent to me yet but looked clear in the cup, especially compared to the first.
    Low back pain became somewhat dehabilitating in 2005
    Have had 11 steroid injections, IDET, Trial for nerve stimulator, PT, chiropractic trial, practically every med known to mankind. Discogram indicated three diseased levels with L5-S1 being the most likely pain generator. Post minimally invasive PLIF with internal fixation (titanium) on 12-28-09 of L5-S1. Doing better than expected. Last opioid 7/9/10. Five months pain free, then my neck turned against me. MRI on 12/1/10-- disease at C2 to C7. Only surgical alternative is to fuse entire C-spine. Diagnosed now with Aggressive Relapsing-Remitting Multiple Sclerosis with cord & brainstem active lesions

  7. #17
    Senior Member Jack-of-all-trades's Avatar
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    Quote Originally Posted by Katie View Post
    Jack, I'm sorry things are not going well.

    When I had my last few UT infections, I was given a little purple pill for pain (along with the antibiotics) and it worked wonders. Sorry, I can't remember the name of it right now.

    Is there any way to find out how the symptoms of an infection settling on an appliance would present themselves? I'll try a Google search tomorrow. Here's hoping you start to feel better before that date comes around.
    I don't know about the symptoms of infection on an appliance either. I can't help but be fearful of the possibility, especially since I still feel so sick.
    Low back pain became somewhat dehabilitating in 2005
    Have had 11 steroid injections, IDET, Trial for nerve stimulator, PT, chiropractic trial, practically every med known to mankind. Discogram indicated three diseased levels with L5-S1 being the most likely pain generator. Post minimally invasive PLIF with internal fixation (titanium) on 12-28-09 of L5-S1. Doing better than expected. Last opioid 7/9/10. Five months pain free, then my neck turned against me. MRI on 12/1/10-- disease at C2 to C7. Only surgical alternative is to fuse entire C-spine. Diagnosed now with Aggressive Relapsing-Remitting Multiple Sclerosis with cord & brainstem active lesions

  8. #18
    Moderator KBear's Avatar
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    Default Re: Why I haven't been around much lately

    Quote Originally Posted by Katie View Post
    Thanks CL. Kathy, yes, you need it every time you have any dental work. When they work in the mouth, there is always some irritation of the tissue which will allow the bacteria in the mouth to get into the blood stream. For whatever reason, it then migrates to the site of any foreign body in us. Once it settles in there, it is very difficult to get rid of it all.

    My dentist looked up the very latest research on this before he called, and said while it was a bit controversial in the past, it is now highly recommended that it be done.

    It may be way off course, but I believe that one of our other members had revision surgery several months after the first because of an infection at the site of the artificial discs, which caused subsidence. I'm a bit fuzzy on all the details. But I wonder if there is a chance that the bacteria got into his system from the above source, instead of from the initial surgery as they suspected. Just musing.......

    Jack, I'm beginning to worry....how are you doing?
    Katie or Anyone- Is there any chance you could lead me in the direction of this research? I asked my pain management doctor about this and he said no, that's only for heart patients. I would rather be on the safe side though, so if I have the research can just give that to the dentist.
    31 years old-
    1/06- In wreck with 18 wheeler at 25 years old; 6/06- Head on collision on Interstate, both wrecks other drivers fault. Numerous MRI's, PT, chiropractic, acupuncture, TENS therapy, massage therapy, facet injections, epidural injections, Nerve study, Discogram, confirms pain in L4/5, IDET, decompression, Bi-lateral neurotomy L3/4/5, denied by insurance twice, in Active L clinical trial, had surgery March 17, 2009 in Miami, FL- received Active L disc at 29 years old. Pain and medication free as of October 2010!
    Mommy to Emma- 8 years, Ava- 5.5 years & had baby Eli after ADR, via c-section on March 25, 2011 , completely pain free still!

  9. #19
    Senior Member Jack-of-all-trades's Avatar
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    Default Re: Why I haven't been around much lately

    I have done a little bit of research but frankly I don't know if I could face the possibility quite yet. Hoping the PSA is due to infection and not cancer, hoping no infection is around the hardware. Sometimes I need a few days to build up my courage for the possibility of that kind of bad news. I'm reasonably sure the worst is not the case for either but us humans are worry warts. I did pass yet another kidney stone last night.

    I'm about ready to try and find someone to admit me to inpatient where stuff happens faster.
    Low back pain became somewhat dehabilitating in 2005
    Have had 11 steroid injections, IDET, Trial for nerve stimulator, PT, chiropractic trial, practically every med known to mankind. Discogram indicated three diseased levels with L5-S1 being the most likely pain generator. Post minimally invasive PLIF with internal fixation (titanium) on 12-28-09 of L5-S1. Doing better than expected. Last opioid 7/9/10. Five months pain free, then my neck turned against me. MRI on 12/1/10-- disease at C2 to C7. Only surgical alternative is to fuse entire C-spine. Diagnosed now with Aggressive Relapsing-Remitting Multiple Sclerosis with cord & brainstem active lesions

  10. #20
    Moderator KBear's Avatar
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    Default Re: Why I haven't been around much lately

    Quote Originally Posted by Jack-of-all-trades View Post
    I have done a little bit of research but frankly I don't know if I could face the possibility quite yet. Hoping the PSA is due to infection and not cancer, hoping no infection is around the hardware. Sometimes I need a few days to build up my courage for the possibility of that kind of bad news. I'm reasonably sure the worst is not the case for either but us humans are worry warts. I did pass yet another kidney stone last night.

    I'm about ready to try and find someone to admit me to inpatient where stuff happens faster.
    I'm sorry you are feeling so crappy. I can't even nor want to know the pain of passing a kidney stone You know you are in pain when you want to go to the hospital. Hope they figure it all out soon.
    31 years old-
    1/06- In wreck with 18 wheeler at 25 years old; 6/06- Head on collision on Interstate, both wrecks other drivers fault. Numerous MRI's, PT, chiropractic, acupuncture, TENS therapy, massage therapy, facet injections, epidural injections, Nerve study, Discogram, confirms pain in L4/5, IDET, decompression, Bi-lateral neurotomy L3/4/5, denied by insurance twice, in Active L clinical trial, had surgery March 17, 2009 in Miami, FL- received Active L disc at 29 years old. Pain and medication free as of October 2010!
    Mommy to Emma- 8 years, Ava- 5.5 years & had baby Eli after ADR, via c-section on March 25, 2011 , completely pain free still!

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