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Why I haven't been around much lately

This is a discussion on Why I haven't been around much lately within the Spine Patient Support: Body, Mind & Spirit forums, part of the Social and Support Forums category; I'm not exactly sure what is going on but for the last two to three months I seem to be ...

  1. #1
    Senior Member Jack-of-all-trades's Avatar
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    Default Why I haven't been around much lately

    I'm not exactly sure what is going on but for the last two to three months I seem to be getting weak/sick with temps of 102 to 104 for one three day stretch. Some days it is just an effort to get up to go to the bathroom. I thought it was recurrent sinus problems as I've had these in the past. I went to an ENT doc who found no problems at the time of my visit. He said the recurrent headaches fit the pattern of cluster headaches or migraines. Since he has them, he has become somewhat of an expert on these. I had a series of labs done including metabolic studies of liver, thyroid, pancreas, blood studies, B12 & folate. Results showed a few abnormalities, some of which could be the cause but nothing really jumped out as the exact cause. The CBC was normal but was drawn a week before the episode of increased temp. With a foreign body in my back, (titanium plates and screws) I can't help but be a little concerned about latent infection or allergic response though these are quite doubtful. I thought about some effect from withdrawal of meds since I've been pushing to get off them but the pattern doesn't really fit. I even tried going back up a little but it didn't help.

    Anyway, thats the reason. I'll check in from time to time.
    Low back pain became somewhat dehabilitating in 2005
    Have had 11 steroid injections, IDET, Trial for nerve stimulator, PT, chiropractic trial, practically every med known to mankind. Discogram indicated three diseased levels with L5-S1 being the most likely pain generator. Post minimally invasive PLIF with internal fixation (titanium) on 12-28-09 of L5-S1. Doing better than expected. Last opioid 7/9/10. Five months pain free, then my neck turned against me. MRI on 12/1/10-- disease at C2 to C7. Only surgical alternative is to fuse entire C-spine. Diagnosed now with Aggressive Relapsing-Remitting Multiple Sclerosis with cord & brainstem active lesions

  2. #2
    Moderator KBear's Avatar
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    Default Re: Why I haven't been around much lately

    So sorry you are going through this and I hope you get some answers soon.
    31 years old-
    1/06- In wreck with 18 wheeler at 25 years old; 6/06- Head on collision on Interstate, both wrecks other drivers fault. Numerous MRI's, PT, chiropractic, acupuncture, TENS therapy, massage therapy, facet injections, epidural injections, Nerve study, Discogram, confirms pain in L4/5, IDET, decompression, Bi-lateral neurotomy L3/4/5, denied by insurance twice, in Active L clinical trial, had surgery March 17, 2009 in Miami, FL- received Active L disc at 29 years old. Pain and medication free as of October 2010!
    Mommy to Emma- 8 years, Ava- 5.5 years & had baby Eli after ADR, via c-section on March 25, 2011 , completely pain free still!

  3. #3
    Senior Member Carmen's Avatar
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    Default Re: Why I haven't been around much lately

    Hi Jack,
    I went to find some upbeat emicons for you and when I came back the post I made for you was gone. This has happened to me before. That is why I don't usually put them in anymore. Sorry I will make you another when I have more energy. This is just to let you know I have been thinking about you. Carmen
    • Scoliosis and multilevel severe degeneration of the intervertebral disks
    • Marked multilevel facet arthrosis
    • Fusion of the L5 and S1 vertebrae
    • Grade 1 spondylolisthesis at L4-L5 and L5 and S1
    • Slight antherolisthesis at L3-4
    • Multilevel asymmetrical neuroforaminal narrowing

  4. #4
    Senior Member Gilbert P's Avatar
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    Default Re: Why I haven't been around much lately

    Hi Jack

    I hope and pray things settle down for you.

    Please let us know what happens we all care

    Rest and get better

    Gil
    L5-S1 lam 1994
    L2 to L5 DDD
    L3 -L4 hern Dec 2007.
    L4-L5 Annular fissure with mild central stenosis and moderate facet hypertrophy.
    L5-S1 bilaterial neural foraminal narrowing with inferior effacement.
    L2-L3 Right-sided neural foraminal narrowing
    L3-L4 related to posterolateral hypertrophic spurs and facet hypertrophy.
    C3-C4 limited DDD
    15 injections Depo. P.T. 18 months 9 dose packs,
    Nerve Block Injections.4 ESI S1
    L5-S1 Foraminotomy 09
    L4-L5 Microdiscectomy 09 ReHerniation 4-2010
    Surgery 6-29-11 L4-L5-S1 Decompression Fusion L5-S1 and Coflex F implants


  5. #5
    Moderator Cindylou's Avatar
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    Default Re: Why I haven't been around much lately

    Hey Jack, thanks for posting. I'm just really sorry you are dealing with this. I hope you get some definitive answers real soon. Let us know, ok? We care.
    • January 2000 MVA passenger, used jaws of life to retrieve me, neck injury and months of PT
    • June 2001 Bicycle accident, 2 compression fractures at T12/L1, Vertebroplasty Sept. 2001
    • April 2006 right hip, labral tear and repair
    • April 2007 3 level ProDisc @ L3/4, L4/5 & L5/6✷ ✷Lumbosacral transitional vertebra; Dr. Rudolph Bertagnoli
    • July 2, 2008 ALIF & Laminectomy @ L6/S1
    • July 30, 2008 re-opened 28 days later to remove bone cement that had leaked onto S1 nerve root
    • August 2008 Pulmonary embolism, double pneumonia, collapsed left lung, re-hospitalized 1 week
    • March 10, 2009 Right SI Joint Fusion
    • April 27, 2010 2nd right hip arthroscopy to remove adhesions and release psoas muscle
    • September 30, 2010 lumbar facet rhizotomy
    • December 9, 2010 12 bilateral lumbar trigger point and steroid injections
    • December 23, 2010 12 more bilateral trigger point injections w/o steroid
    • February 15, 2011 ESI bilaterally in lower lumbar...relief only for few days. Considering 1 more.
    Did Spinal Cord Stimulator trial from 5/11/11-5/17/11 with excellent results; Spinal Cord Stimulator surgery is Monday,
    July 18, 2011

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    Default Re: Why I haven't been around much lately

    Wow Jack.....so sorry to hear about such consistent issues. I cant believe that after all those tests they couldnt come up with anything. Just glad you came on to let us know whats going on. Were all here for you if you need us. I know you'd do the same for us so DONT HESITATE TO ASK! Take care buddy.

  7. #7
    Senior Member linda's Avatar
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    Default Re: Why I haven't been around much lately

    Hey Jack,
    I have been wondering where you have been. I hope all of this passes soon. Do you take any supplements? Please keep up posted and take is easy. Our NC summers are rough and I know this doesn't help. I'm worried that this has dragged on for so long. Take care my friend.
    Linda
    L5-S1 shot with small schmorl's node
    L4-5 mild bulge with mild facet DJD
    L2-3 minimal disc bulge
    L5-S1 ADR cancelled 8-14 need to reschedule
    Major pain everyday

  8. #8
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    Default Re: Why I haven't been around much lately

    Dear Jack,
    Ditto what everyone else said. You have been missed. Please keep us posted.
    CD
    44 year old female
    LBP for more than three years
    DDD at L4/L5
    annular tears and bulge
    PT, ESI, chiropractic, massage -unsuccessful
    MRI & discography July 2009-positive @ L4/L5
    3 denials from UHC
    Enrolled in Axiomed Freedom Lumbar Trial
    Freedom disc @ L4/L5 by Dr. Zigler on 2/18/10

  9. #9
    Senior Member Katie's Avatar
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    Default Re: Why I haven't been around much lately

    Hey Jack, I'll add my condolences on how sorry I am that you are going through this.

    If you want to put your mind to rest about allergies to the artificial disc, you could send a blood sample off to Rush University. They literally saved me from disaster when they diagnosed my severe allergies to six common metals.

    Have you had any dental work done lately? And if so, did you take any preventative antibiotics?. My dentist called the other day just before my appointment for a cleaning to give me a prescription. I had completely forgotten about needing it. (For others who are not familiar with this, it prevents the bacteria that are released into the bloodstream from congregating at the site of the discs or even hip replacements, etc.)

    I hope you find the cause of this quickly. I was so sick (but without the fever) for weeks after I got home from surgery, then found out I was intolerant to dairy all of a sudden. I hope it is something as simple as that for you, and is over with soon.

    Please keep us posted.
    Severe compression of spinal cord, flaval ligament, etc. at C4/5 & 5/6.
    Herniation and compression, at L3/4 to L5/S1 plus spondylosis at the latter level. Severe allergy to most metals.
    Three level surgery in Brazil with Dr. Luiz Pimenta on March 17/2010 using non-metal appliances. L5/S1-PEEK cage, ALIF; L4/5-PEEK cage, XLIF; C5/6-NuVasive NeoDisc. Three separate approaches, two minimally invasive. Currently minor residual back pain, from SI ligament and still overdoing things . Therapy and chiropractic treatments helping immensely. Gone from being almost bedridden to near normal activities including gardening. Life is gooooood!

  10. #10
    Moderator KBear's Avatar
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    Default Re: Why I haven't been around much lately

    Quote Originally Posted by Katie View Post
    Hey Jack, I'll add my condolences on how sorry I am that you are going through this.

    If you want to put your mind to rest about allergies to the artificial disc, you could send a blood sample off to Rush University. They literally saved me from disaster when they diagnosed my severe allergies to six common metals.

    Have you had any dental work done lately? And if so, did you take any preventative antibiotics?. My dentist called the other day just before my appointment for a cleaning to give me a prescription. I had completely forgotten about needing it. (For others who are not familiar with this, it prevents the bacteria that are released into the bloodstream from congregating at the site of the discs or even hip replacements, etc.)

    I hope you find the cause of this quickly. I was so sick (but without the fever) for weeks after I got home from surgery, then found out I was intolerant to dairy all of a sudden. I hope it is something as simple as that for you, and is over with soon.

    Please keep us posted.
    Do you have to do this every time you have dental work? Or just right after surgery? I think I kinda remember something about that, but not really.
    31 years old-
    1/06- In wreck with 18 wheeler at 25 years old; 6/06- Head on collision on Interstate, both wrecks other drivers fault. Numerous MRI's, PT, chiropractic, acupuncture, TENS therapy, massage therapy, facet injections, epidural injections, Nerve study, Discogram, confirms pain in L4/5, IDET, decompression, Bi-lateral neurotomy L3/4/5, denied by insurance twice, in Active L clinical trial, had surgery March 17, 2009 in Miami, FL- received Active L disc at 29 years old. Pain and medication free as of October 2010!
    Mommy to Emma- 8 years, Ava- 5.5 years & had baby Eli after ADR, via c-section on March 25, 2011 , completely pain free still!

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