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Wishing all a Happy 2010, and working through a few issues

This is a discussion on Wishing all a Happy 2010, and working through a few issues within the Spine Patient Support: Body, Mind & Spirit forums, part of the Social and Support Forums category; I sincerely wish all of you a happy, and a better 2010. 2009 has been a rough year for many ...

  1. #1
    Senior Member daveinaustin's Avatar
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    Default Wishing all a Happy 2010, and working through a few issues

    I sincerely wish all of you a happy, and a better 2010. 2009 has been a rough year for many of us. I sincerely hope and pray that 2010 will bring the beginning of a step forward for all of us towards healing and reduced pain.

    As some people have noticed and kindly PM'd me, I have not been online much over the past month. Unfortunately, my back took a turn for the worst after three excrutiating flights in October and November attempting to consult with a doctor, not having the heart to cancel a family vacation planned 10 months ago, and then finally meeting up with the doctor.

    Since then, my condition has significantly deterioriated, and I can only spend about an hour out of bed per day. I cannot sit nor stand without strong pain, regardless of medicinal regimen.

    My wife and doctors advised me to reduce stress and attempt to overcome the increased depression. Unfortunately, in order for me to help others, I internalize the pain that others feel. It's just how my personality and composition is made of. This is also one of the reasons why you haven't heard from me lately.

    Although my wife recently thought it would be a good idea to post my depression and challenges on the forum, I did not want to be seen as needy, or as a burden onto others. But, rather, to be seen as a person who could provide assistance to others during their time of their needs, and to provide research and insight.

    However, it was brought to my attention that I am nothing more than a time waster to those who could be assisting others. This was the last thing that my currently low esteem could take, after 11 years of back issues, endless procedures/surgeries, and 3 1/2 years of severe, chronic pain.

    Even with the state of current technology, I am outside the 80% case of those who can be treated. My doctors do not have the time to determine the source of my pain, which has lead me to hundreds if not thousands of hours of painstaking research. I still cannot definitely determine why I have such chronic pain, and have not been able to provide the support that my family deserves. It seems if you fall outside of the ailment pareto curve, nobody gives a damn about your condition.

    The last year has truly been a nightmare. When I was three, my father was hit by a drunk driver, leaving him unable to be the father that I needed. Unfortunately, I have now become him. Besides no longer being able to support my family, it has been extremely painful not being able to teach them how to ride a bike, swim, or throw a football. Those who are parents can understand.

    In order to no longer be a burden upon others, I simply want to sincerely thank those who've kept me in their prayers, have given encouragement during my last surgery, and who have spent their precious time trying to help determine the source of my pain. I did not mean to be such a burden to those who tried to help.

    Unfortunately, I have not improved, and am slated for yet another fusion surgery next Thursday. There is some conjecture on the cause of my pain. But, there is still nothing conclusive. My only prayer is that this surgery does not leave me more incapicatated than where I am today.

    Good luck to all in 2010. Signing off, and best wishes. Sorry for the bummer post on New Years, but providing closure might provide the "kick in the pants" to move me forward.

    Farewell,

    -Dave

    p.s., Thank you Justin for creating such an open atmosphere for people who need assistance. It is unique, and you have helped so many with their needs. I sincerely wish you the best with your future!
    Last edited by daveinaustin; 01-04-2010 at 08:55 AM. Reason: Embarrased, let too much bottled up
    Discectomy/Laminotomy, 1999
    L4-S1 DDD, 10/06
    Stalif Fusion L5-S1, 3/07
    Intrepid Fusion L4-L5, 7/08
    Increasing pain since solid fusing, 1/09
    Bilateral Transforaminal Injections 3/09
    Facet Joint Injections (L3-S1) 4/09
    RF Ablation (Medial Branch) 5/09
    CT Scan, MRI w/ contrast (no new info) 5/09
    Latest:
    - I wake up with no pain
    - Stand/sit for 15 mins., pinching pain begins
    - Pain at center, core L4-L5
    - Lying down, pulsing/throbbing pain for 2-3 hours
    - Taking 6-8 Norcos/day
    SCS Implant 8/31/09

  2. #2
    Senior Member ajj1001's Avatar
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    Default Re: Wishing all a Happy 2010, and working through a few issues

    Quote Originally Posted by daveinaustin View Post
    I sincerely wish all of you a happy, and a better 2010. 2009 has been a rough year for many of us. I sincerely hope and pray that 2010 will bring the beginning of a step forward for all of us towards healing and reduced pain.
    Thats exactly what I am hoping for. My husband asked what I wanted from 2010 and I said for it not to be 2009 again. Not a year I would want to live through again.

    Quote Originally Posted by daveinaustin View Post
    Although my wife recently thought it would be a good idea to post my depression and challenges on the forum, I did not want to be seen as needy, or as a burden onto others. But, rather, to be seen as a person who could provide assistance to others during their time of their needs, and to provide research and insight.

    However, it was brought to my attention that I am nothing more than a time waster to those who could be assisting others. This was the last thing that my currently low esteem could take, after 11 years of back issues, endless procedures/surgeries, and 3 1/2 years of severe, chronic pain.
    You are not a burden. Please share if you need to or if you don't want to post on the forum PM me. Sometimes all that keeps me battling on is knowing that I am not the only one going through this. Best wishes that 2010 is an improvement for you.
    Alison 46 year old female
    2012 Doing Rehab
    2011 Sept 3rd Op Removal of old instrumentation and PLIF L4/L5 - L5/S1 both adr in situ
    2010 May Discogram on L2/L3 & L3/L4
    2009 May 2nd Op Failed revision fusion on L5/S1 with Charite ADR in situ
    2008 Caudal epidural exacerbated nerve symptoms. Prolapse L2/L3
    2007 L5/S1 Facet deterioration
    2002 March 1st Op ADR Charite - L4/5, L5/S1
    2000 Disc prolapses L4/5, L5/S1

  3. #3
    Senior Member Katie's Avatar
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    Default Re: Wishing all a Happy 2010, and working through a few issues

    Dave, you have done nothing but provide wonderful help to me, with saying almost nothing about your own miserable position. Your post is like a kick in the belly to me; I feel awful that you have spent so much energy out of your very limited day by helping me. You have a huge heart and have worked endlessly to provide relief to complete strangers.

    If I could carry some of your pain, I would. You of all people don't deserve this complication, of not knowing how to fix things. It's hard enough when the cause of the pain is fairly obvious...another completely when you feel completely lost and that no one cares to help. You are special, very special...and it comes with complications unfortunately.

    I pray that you find relief with the latest surgery and that you feel well enough to come back and post progress reports. I second Alison with the hope that you will PM if you feel the need to talk. I will truly miss your imput. Thanks my friend.
    Severe compression of spinal cord, flaval ligament, etc. at C4/5 & 5/6.
    Herniation and compression, at L3/4 to L5/S1 plus spondylosis at the latter level. Severe allergy to most metals.
    Three level surgery in Brazil with Dr. Luiz Pimenta on March 17/2010 using non-metal appliances. L5/S1-PEEK cage, ALIF; L4/5-PEEK cage, XLIF; C5/6-NuVasive NeoDisc. Three separate approaches, two minimally invasive. Currently minor residual back pain, from SI ligament and still overdoing things . Therapy and chiropractic treatments helping immensely. Gone from being almost bedridden to near normal activities including gardening. Life is gooooood!

  4. #4
    Moderator Cindylou's Avatar
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    Default Re: Wishing all a Happy 2010, and working through a few issues

    Dave, I tag you back and wish you a happy, healthy 2010. You certainly have been no burden to me. I thoroughly appreciate your insights and the compassionate person you so richly are.

    Please don't lose sight of the fact that sometimes we are the givers, and other times the receivers in life. It's okay to be a receiver when life throws us these endless curve balls. We wouldn't know how to give, if we haven't experienced the comfort of receiving, when we need it so desperately. I will keep you in my prayers for this upcoming surgery and hope it will give you some measure of relief. I do know exactly what you mean about the medical system not giving a damn if you fall out of the "cure curve," I like to call it. It is sadly true.

    What I don't understand is why you would be leaving SPS when you so clearly need support, my friend. That's why we are here. You cannot do this alone. None of us can. This is your time to receive. Tap into us......we are here for you. PM me if you would prefer.

    I hope you will reconsider your departure. Oh, and one other thought.....try not to beat yourself up by concluding you have become your Father....I know, very hard not to do, but your life circumstances are very different from your Father's, and your dependents are still very young. You have a long time to still recover and be the supportive Father I know you are inside.

    God bless my friend,

    Cindylou
    • January 2000 MVA passenger, used jaws of life to retrieve me, neck injury and months of PT
    • June 2001 Bicycle accident, 2 compression fractures at T12/L1, Vertebroplasty Sept. 2001
    • April 2006 right hip, labral tear and repair
    • April 2007 3 level ProDisc @ L3/4, L4/5 & L5/6✷ ✷Lumbosacral transitional vertebra; Dr. Rudolph Bertagnoli
    • July 2, 2008 ALIF & Laminectomy @ L6/S1
    • July 30, 2008 re-opened 28 days later to remove bone cement that had leaked onto S1 nerve root
    • August 2008 Pulmonary embolism, double pneumonia, collapsed left lung, re-hospitalized 1 week
    • March 10, 2009 Right SI Joint Fusion
    • April 27, 2010 2nd right hip arthroscopy to remove adhesions and release psoas muscle
    • September 30, 2010 lumbar facet rhizotomy
    • December 9, 2010 12 bilateral lumbar trigger point and steroid injections
    • December 23, 2010 12 more bilateral trigger point injections w/o steroid
    • February 15, 2011 ESI bilaterally in lower lumbar...relief only for few days. Considering 1 more.
    Did Spinal Cord Stimulator trial from 5/11/11-5/17/11 with excellent results; Spinal Cord Stimulator surgery is Monday,
    July 18, 2011

  5. #5
    Senior Member New-disc's Avatar
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    Default Re: Wishing all a Happy 2010, and working through a few issues

    Dave,

    Sorry to hear the news... your in my prayers.

    Please feel free to e-mail camaro_travels@yahoo.com

    I also have a wife, and kids ... teaching them to have love, and compassion for someone is one of the best gifts I was able to give them.

    Todd
    Last edited by New-disc; 01-01-2010 at 11:24 AM.
    ------------------------------------------------------------------------------------------
    * Stenum Hospital (Germany) Maverick disc implanted (10-19-07) L4-L5

    * To view my post-op video's click- http://www.youtube.com/ type ADR surgery into the space bar

    * Fusion of c5-c6 on (11-02-09) Boston, USA http://fusion-c5-c6.blogspot.com/
    ------------------------------------------------------------------------------------------

  6. #6
    Moderator Cindylou's Avatar
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    Default Re: Wishing all a Happy 2010, and working through a few issues

    Amen Todd. Well said. :thumpup:
    • January 2000 MVA passenger, used jaws of life to retrieve me, neck injury and months of PT
    • June 2001 Bicycle accident, 2 compression fractures at T12/L1, Vertebroplasty Sept. 2001
    • April 2006 right hip, labral tear and repair
    • April 2007 3 level ProDisc @ L3/4, L4/5 & L5/6✷ ✷Lumbosacral transitional vertebra; Dr. Rudolph Bertagnoli
    • July 2, 2008 ALIF & Laminectomy @ L6/S1
    • July 30, 2008 re-opened 28 days later to remove bone cement that had leaked onto S1 nerve root
    • August 2008 Pulmonary embolism, double pneumonia, collapsed left lung, re-hospitalized 1 week
    • March 10, 2009 Right SI Joint Fusion
    • April 27, 2010 2nd right hip arthroscopy to remove adhesions and release psoas muscle
    • September 30, 2010 lumbar facet rhizotomy
    • December 9, 2010 12 bilateral lumbar trigger point and steroid injections
    • December 23, 2010 12 more bilateral trigger point injections w/o steroid
    • February 15, 2011 ESI bilaterally in lower lumbar...relief only for few days. Considering 1 more.
    Did Spinal Cord Stimulator trial from 5/11/11-5/17/11 with excellent results; Spinal Cord Stimulator surgery is Monday,
    July 18, 2011

  7. #7
    Founder / Administrator Justin's Avatar
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    Default Re: Wishing all a Happy 2010, and working through a few issues

    Quote Originally Posted by daveinaustin View Post

    p.s., Thank you Justin for creating such an open atmosphere for people who need assistance. It is unique, and you have helped so many with their needs. I sincerely wish you the best with your future!
    Dave, you are not a burden to any of us. You have been so extremely supportive and caring to so many Spine Patient Society Members even while facing your own struggles. If that is not the definition of selflessness, I don't know what is.

    You have been through so much over the last year. However, I do know that your "turning point" is near and that your perseverance will pay off. We are here for you unconditionally--no matter what procedure, surgeon or plan you decide to pursue. We care about you and your well-being. At the end of the day, the SPS is for Spine Patients to connect and support one another. If we can't support one another, who will?

    Back pain and spine issues can be isolating to the point where you feel like the only survivor on the "Island of Pain." We (I) have been in your shoes to a certain degree over the last 15+ years, and without the stories of others to connect with and the common goal of feeling better, I would have thrown in the towel a long time ago. I make sure to frequent these Forums daily, as I know how much they have helped me during some of the most challenging struggles I have faced to date.

    We are here to face these temporary struggles with you.

    I know you will ultimately be triumphant, as there are many great days lurking around the corner.

    Justin Averna
    Founder & President, Spine Patient Society™
    www.SpinePatientSociety.org
    A 501(c)(3) Tax-Exempt Nonprofit & Charitable Organization


    • 1994: Football Injury, Severe Hyperextension
    • 1997: Snow Skiing Injury
    • 3/7/1997: Laminotomy L4/L5
    • 1999 & 2003: Motor Vehicle Accidents (not at fault both times) --> Grade V Annular Tears L4/L5 & L5/L6
    • 11/15/2003: 2-Level ProDiscฎ L4/L5 & L5/L6*, *lumbosacral transitional vertebra --> Dr. Rudolf Bertagnoli
    • 4/2008: 4.5 years pain-free before "new" leg pain
    • 5/14/2009: Dynamic Stabilization System L4/L5, Dr. Rudolf Bertagnoli
    I'm here to help.
    Questions? Suggestions? Need help with registering, creating a signature, etc.?
    justin (at) spinepatientsociety.org


    Disclosure: I have no financial relationships with any surgeons, spine clinics, device manufacturers, pharmaceutical companies, hospitals, etc. -- the SPS Board of Directors serve without compensation.

  8. #8
    Senior Member Katie's Avatar
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    Default Re: Wishing all a Happy 2010, and working through a few issues

    Dave, Cindylou said it best: "We are here for you unconditionally--no matter what procedure, surgeon or plan you decide to pursue. We care about you and your well-being. At the end of the day, the SPS is for Spine Patients to connect and support one another. If we can't support one another, who will?"

    I sincerely hope that you will stay on the forum and share your wealth and progress reports with us. Hugs.
    Severe compression of spinal cord, flaval ligament, etc. at C4/5 & 5/6.
    Herniation and compression, at L3/4 to L5/S1 plus spondylosis at the latter level. Severe allergy to most metals.
    Three level surgery in Brazil with Dr. Luiz Pimenta on March 17/2010 using non-metal appliances. L5/S1-PEEK cage, ALIF; L4/5-PEEK cage, XLIF; C5/6-NuVasive NeoDisc. Three separate approaches, two minimally invasive. Currently minor residual back pain, from SI ligament and still overdoing things . Therapy and chiropractic treatments helping immensely. Gone from being almost bedridden to near normal activities including gardening. Life is gooooood!

  9. #9
    Moderator KBear's Avatar
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    Default Re: Wishing all a Happy 2010, and working through a few issues

    Dave,
    You have definitely not been a burden to me. You have been very helpful and never fail to make me laugh when I am having a bad day. If all of us were in a position to help, and no one needed help, it wouldn't be much of a forum. I know I have been on both sides of the help. It is easy to feel needy and unhelpful when you aren't feeling good; but that is a lie. I had times where I had convinced myself that my kids would be better off if I were dead. Now, I know that isn't true; but at the time it sure felt that way.

    I also understand internalizing others problems, as I am that personality too. It just means that we love and we love deeply. This is something I have been dealing with in the last couple of weeks and trying to not do; but I don't know how to stop. I dream about my nephew, it's all I can think about. I try not to think about it, but I can't. While that can definitely be bad for our emotional health, it is also a gift to those around us (our spouses, children) as they get real unconditional love.

    I hope you will once again share with us what is going on in your life. I know it can feel like we are only taking, when we are in those positions; but we want to be there for you. I know I never thought I would get to where I am today. While I am not out of pain, I am much better and can enjoy my life again. You too will get there. It took me 3 years before I had someone tell me what was wrong with me. On the 12th of this month, is 4 years since my accident. This is definitely not something I had planned for my life, or wanted, or would want to do again; but you couldnt' give me anything in the world to take it away. I have grown so much through these trials, and learned so much, that I can now see that it did benefit me.

    Happy New Year and I am praying for you and your family!
    God Bless,
    Kathy
    31 years old- 1/06- In wreck with 18 wheeler at 25 years old; 6/06- Head on collision on Interstate, both wrecks other drivers fault. Numerous MRI's, PT, chiropractic, acupuncture, TENS therapy, massage therapy, facet injections, epidural injections, Nerve study, Discogram, confirms pain in L4/5, IDET, decompression, Bi-lateral neurotomy L3/4/5, denied by insurance twice, in Active L clinical trial, had surgery March 17, 2009 in Miami, FL- received Active L disc at 29 years old. Pain and medication free as of October 2010!Mommy to Emma- 8 years, Ava- 6 years & had baby Eli after ADR, via c-section on March 25, 2011 , completely pain free still!

  10. #10
    Senior Member
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    Default Re: Wishing all a Happy 2010, and working through a few issues

    Dave - I've been without an internet connection for the past few days & when I read your post was taken aback. I just want to reiterate what other people have said - you've in no way been a burden. I don't know who led you to think this but I guess some people can say some pretty mean, hurtfull things. I truly hope your upcoming surgery is successful & brings you the relief you so need - for me the pre & post op phase is a time when I was in desperate need of the contact & support of others who had gone through similar procedures. I hope you can stay on the forum but understand if you feel you can't for the timebeing.

    Praying that 2010 is a much better year for you & that the bad times are behind you.

    Take care.
    1993 Back pain age 29.
    1998-2001 DDD at L1/2. 10 admissions for discography/epidurals/facet injections/disc injections/RFA's.
    2005 ALIF at L1/2 with BMP & good result: pain free
    2007 DDD at L4/5 unresponsive to epidural. Discography: early degeneration, anular tear & bulge. Limited response to core strengthening.
    2009 ADR (activ L) L4/5.
    2012 Myofascial Pain Syndrome T10-L2

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