Arachnoiditis

[debi]

Justin,

Having had 3 lumbar surgeries and 1 neck surgery, I would like to thank you so much for putting all of this information together in one place. Although I would like to make a suggestion. Could you add arachnoiditis to your information? I was diagnosed with this by a mylogram, but since most doctors refuse to discuss it I was not informed until years later. This condition is at times more painful than the surgery that caused it. It is so debilatating it is impossible to hold a steady job and the worst part is that most doctors refuse to acknowledge it. In fact with all of the doctors I've seen throughout the years I have found only one willing to put it in writing. It would not surprise me if there are hundreds or even thousands of people suffering from the pain of arachnoiditis and have no idea what is wrong with them because they have never been told by their doctor.

Thanks for a terrific website,
Debi

[Justin]

Hi Debi,

Welcome to the Spine Patient Society!

My gosh, you have been through a lot (4 spine surgeries). Thank you for your feedback about the Spine Patient Society--it is great to hear that we are helping Spine Patients.

I will most definitely add information about arachnoiditis to the website. I have actually spoken with many Spine Patients that have been diagnosed with arachnoiditis. Unfortunately, it is a very debilitating condition in which there are few treatment options (symptoms can really only be managed, as I'm sure you know firsthand).

Thanks again for your suggestion and welcome to the Society! BTW...Stay tuned, as we are adding more features this coming weekend.

[Justin]

I'll be adding more information soon, but here is a quick overview about Arachnoiditis.
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Here's some information on Arachnoiditis from the National Institute of Neurological Disorders and Stroke:

What is Arachnoiditis?

Arachnoiditis describes a pain disorder caused by the inflammation of the arachnoid, one of the membranes that surround and protect the nerves of the spinal cord. The arachnoid can become inflamed because of an irritation from chemicals, infection from bacteria or viruses, as the result of direct injury to the spine, chronic compression of spinal nerves, or complications from spinal surgery or other invasive spinal procedures. Inflammation can sometimes lead to the formation of scar tissue and adhesions, which cause the spinal nerves to “stick” together. If arachnoiditis begins to interfere with the function of one or more of these nerves, it can cause a number of symptoms, including numbness, tingling, and a characteristic stinging and burning pain in the lower back or legs. Some people with arachnoiditis will have debilitating muscle cramps, twitches, or spasms. It may also affect bladder, bowel, and sexual function. In severe cases, arachnoiditis may cause paralysis of the lower limbs.

Is there any treatment?

Arachnoiditis remains a difficult condition to treat, and long-term outcomes are unpredictable. Most treatments for arachnoiditis are focused on pain relief and the improvement of symptoms that impair daily function. A regimen of pain management, physiotheraphy, exercise, and psychotheraphy is often recommended. Surgical intervention is controversial since the outcomes are generally poor and provide only short-term relief. Clinical trials of steroid injections and electrical stimulation are needed to determine the efficacy of these treatments.

What is the prognosis?

Arachnoiditis appears to be a disorder that causes chronic pain and neurological deficits and does not improve significantly with treatment. Surgery may only provide temporary relief. Aging and pre-existing spinal disorders can make an accurate prognosis problematic. The outlook for someone with arachnoiditis is complicated by the fact that the disorder has no predictable pattern or severity of symptoms.

What research is being done?

Within the NINDS research programs, arachnoiditis is addressed primarily through studies associated with pain research. NINDS vigorously pursues a research program seeking new treatments for pain and nerve damage with the ultimate goal of reversing debilitating conditions such as arachnoiditis.

Prepared by:
Office of Communications and Public Liaison
National Institute of Neurological Disorders and Stroke
National Institutes of Health
Bethesda, MD 20892