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Psychological Games!!

This is a discussion on Psychological Games!! within the Spine-Related Conditions & Conservative Spine Treatment forums, part of the General Spine Discussion Forums category; Hello Everyone, Well, here I am 10 days until my ADR surgery. Lo and Behold, today was one of those ...

  1. #1
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    Default Psychological Games!!

    Hello Everyone,
    Well, here I am 10 days until my ADR surgery. Lo and Behold, today was one of those extremely rare days in which my pain levels were relatively low. I even went to lunch and sat in a booth (you guys know what a big deal this is). Normally I would say a big prayer of Thanks. All it has done is make me a little more mentally unstable about my surgery. I KNOW I am doing the right thing.....and at the right place....and with the right surgeon. This is normal, Right? I fear I will get a little more weird each day. I am even working on my checklist and trying to get things prepared for the grandparents caring for my three boys while my husband and I are away. Just a couple of questions.

    1)I have taken it upon myself to gradually taper off my prescription pain meds. No one told me to do this. I just get ideas in my brain. I know for a fact Dr. Zigler prescribes hydrocodone upon discharge. I have been taking that for months and have quite a tolerance. I feel like I would rather have some really crappy days NOW in order to have really good pain control post-operatively. Anyone have an opinion on this?

    2)I am pretty worried about sleeping after the surgery. Ever since my pregnancies I have slept on my side. Will this be possible after surgery? Any tips? I have purchased several new fluffy pillows. I also have moved a lazy-boy recliner to my bedroom. It seems like I heard someone say with ADR changing positions is crucial, and too much of anything is bad.

    Thanks to you guys. I have been so grateful for you! It is terribly easy to feel alone in this plight. My husband had a laminectomy 4 years ago so he totally gets it. I think he is pumped about bossing me around for a while and being the "Activity Police". On one hand I am pretty stubborn and HATE being disabled....on the other I am so excited about this and will be compliant for a positive end result.

    Thanks!
    CD
    44 year old female
    LBP for more than three years
    DDD at L4/L5
    annular tears and bulge
    PT, ESI, chiropractic, massage -unsuccessful
    MRI & discography July 2009-positive @ L4/L5
    3 denials from UHC
    Enrolled in Axiomed Freedom Lumbar Trial
    Freedom disc @ L4/L5 by Dr. Zigler on 2/18/10

  2. #2
    Senior Member Katie's Avatar
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    Default Re: Psychological Games!!

    LOL, CD, when I have more than two hours of 'lesser' pain, I am suspicious that I have been exaggerating all these years, and my surgery isn't even booked yet!

    What you are going through is entirely normal...you would be weird if it didn't happen, I think. Your idea of cutting back on your meds now is interesting. Terry might be able to chime in on this, as his profession revolves around this sort of thing. That is the one thing that scares the #*@# out of me...not being able to control the pain post-op.

    I love your description of the power plans in your house. I think mine may be similar ;-)
    Severe compression of spinal cord, flaval ligament, etc. at C4/5 & 5/6.
    Herniation and compression, at L3/4 to L5/S1 plus spondylosis at the latter level. Severe allergy to most metals.
    Three level surgery in Brazil with Dr. Luiz Pimenta on March 17/2010 using non-metal appliances. L5/S1-PEEK cage, ALIF; L4/5-PEEK cage, XLIF; C5/6-NuVasive NeoDisc. Three separate approaches, two minimally invasive. Currently minor residual back pain, from SI ligament and still overdoing things . Therapy and chiropractic treatments helping immensely. Gone from being almost bedridden to near normal activities including gardening. Life is gooooood!

  3. #3
    Moderator Cindylou's Avatar
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    Default Re: Psychological Games!!

    Yes, CD, so very normal as Katie already said. I would just try and stay as busy and distracted as you can before surgery, to try to minimize "the fear factor." Terry will likely chime in too, but personally I think it is a great idea to taper way down or off your narcotics pre-surgery. Your body will thank you after surgery when you need those strong meds, and you won't be so tolerant of their effect.

    Good, good luck...and hang in there. You will do just fine.
    • January 2000 MVA passenger, used jaws of life to retrieve me, neck injury and months of PT
    • June 2001 Bicycle accident, 2 compression fractures at T12/L1, Vertebroplasty Sept. 2001
    • April 2006 right hip, labral tear and repair
    • April 2007 3 level ProDisc @ L3/4, L4/5 & L5/6✷ ✷Lumbosacral transitional vertebra; Dr. Rudolph Bertagnoli
    • July 2, 2008 ALIF & Laminectomy @ L6/S1
    • July 30, 2008 re-opened 28 days later to remove bone cement that had leaked onto S1 nerve root
    • August 2008 Pulmonary embolism, double pneumonia, collapsed left lung, re-hospitalized 1 week
    • March 10, 2009 Right SI Joint Fusion
    • April 27, 2010 2nd right hip arthroscopy to remove adhesions and release psoas muscle
    • September 30, 2010 lumbar facet rhizotomy
    • December 9, 2010 12 bilateral lumbar trigger point and steroid injections
    • December 23, 2010 12 more bilateral trigger point injections w/o steroid
    • February 15, 2011 ESI bilaterally in lower lumbar...relief only for few days. Considering 1 more.
    Did Spinal Cord Stimulator trial from 5/11/11-5/17/11 with excellent results; Spinal Cord Stimulator surgery is Monday,
    July 18, 2011

  4. #4
    Senior Member ajj1001's Avatar
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    Default Re: Psychological Games!!

    Quote Originally Posted by scduggan View Post
    2)I am pretty worried about sleeping after the surgery. Ever since my pregnancies I have slept on my side. Will this be possible after surgery? Any tips? I have purchased several new fluffy pillows. I also have moved a lazy-boy recliner to my bedroom. It seems like I heard someone say with ADR changing positions is crucial, and too much of anything is bad.
    I found sleeping on my side very comfortable as long as I kept a pillow between my legs to keep my spine in line. You could also try having pillows behind you to support you in the position. The lazy boy will be really good for reclining and snoozing in a good zig zag position.
    Alison 46 year old female
    2011 Aug PLIF L4/L5 - L5/S1 both adr in situ
    2010 May - Discogram on L2/L3 & L3/L4, neither pain generators
    2009 May - Failed revision fusion on L5/S1 with Charite ADR in situ
    2008 Caudal epidural exacerbated nerve symptoms. Prolapse L2/L3
    2007 L5/S1 Facet deterioration
    Brilliant 5 years, no pain only minor motor problems and residual nerve damage
    2002 March - ADR Charite - L4/5, L5/S1
    2000 Disc prolapses L4/5, L5/S1

  5. #5
    Senior Member WPKat's Avatar
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    Default Re: Psychological Games!!

    CD,

    Who could blame you for feeling anxious before surgery? Believe me, I so get how you are feeling right now!

    I also understand questioning yourself when you happen to have a low pain day. I was lucky enough to have an exceptionally low pain day last week myself. I was encouraged and I allowed myself to day dream about how great life would be if it would just stay that way - I would never need another pain killer, spine procedure or surgery. But my pain flucuates - I think sometimes it's controlled by the wind - just kidding You were blessed with a good day and isn't it about time that you had one?

    (1) I agree with you about tapering down a bit if you can. Have you talked with your surgeon about what you are currently taking for pain medications (i.e., type, dosage and frequency)? Would he consider bumping you up for a while afterwards? They put me on oxycodone after my back surgery. Perhaps a month later, I asked to move down to vidodin. It takes time to adjust to a lower dosage, but I've always been a big believer in keeping my tolerance to pain medications on the low side.

    (2) I have not had ADR surgery (but I am seriously considering it now). After my back surgery, however, I was able to sleep on my back with my legs propped up with pillows (and I never slept on my back before). After a while, I was able to sleep comfortably on my side with a pillow in between my legs. I would definitely ask the surgeon what he recommends and if there are any limitations.

    I envy you that your husband has personal experience and can empathize with your pain. Don't get me wrong, I wouldn't wish this on anyone - especially not my husband - but it's hard for him to really "get it."

    Activity police? Does he have a plan of action for you after your surgery so that you have an easier recovery? If so, that's such a blessing. Although you might become annoyed by the bossy aspect , it's like to having your own personal trainer!

    Good Luck!
    K
    Diagnosis
    L3/L4 M6-L ADR; severe bilateral facet joint arthropathy - sclerotic; moderate foraminal stenosis (r)
    L4/L5 M6-L ADR; severe bilateral facet joint arthropathy - sclerotic; posterior decompression
    L5/S1 bilateral hemisacralized

    Procedures or Diagnostics
    3/09 L3/L4 - L4/L5 Laminectomy; L4/L5 w Disectomy
    7/09 Facet Joint Inj, Radiofrequency Thermocoagulation: 4Left
    4/10 Discogram

    6/10 L3/L4 - L4/L5 M6-L ADR
    8/11 L5 Epidural Steriod Inj: 1Left
    10/11 CT Myleogram

  6. #6
    Founder / Administrator Justin's Avatar
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    Default Re: Psychological Games!!

    Quote Originally Posted by scduggan View Post
    Hello Everyone,
    Well, here I am 10 days until my ADR surgery. Lo and Behold, today was one of those extremely rare days in which my pain levels were relatively low. I even went to lunch and sat in a booth (you guys know what a big deal this is). Normally I would say a big prayer of Thanks. All it has done is make me a little more mentally unstable about my surgery. I KNOW I am doing the right thing.....and at the right place....and with the right surgeon. This is normal, Right? I fear I will get a little more weird each day. I am even working on my checklist and trying to get things prepared for the grandparents caring for my three boys while my husband and I are away. Just a couple of questions.

    1)I have taken it upon myself to gradually taper off my prescription pain meds. No one told me to do this. I just get ideas in my brain. I know for a fact Dr. Zigler prescribes hydrocodone upon discharge. I have been taking that for months and have quite a tolerance. I feel like I would rather have some really crappy days NOW in order to have really good pain control post-operatively. Anyone have an opinion on this?

    2)I am pretty worried about sleeping after the surgery. Ever since my pregnancies I have slept on my side. Will this be possible after surgery? Any tips? I have purchased several new fluffy pillows. I also have moved a lazy-boy recliner to my bedroom. It seems like I heard someone say with ADR changing positions is crucial, and too much of anything is bad.

    Thanks to you guys. I have been so grateful for you! It is terribly easy to feel alone in this plight. My husband had a laminectomy 4 years ago so he totally gets it. I think he is pumped about bossing me around for a while and being the "Activity Police". On one hand I am pretty stubborn and HATE being disabled....on the other I am so excited about this and will be compliant for a positive end result.

    Thanks!
    CD
    Hi CD,

    Feel "well" right before surgery is common for many Spine Patients. Before my two-level artificial disc replacement surgery in 2003, I vividly remember the week before surgery as I wasn't feeling that bad. I was worried that I was "jumping the gun" on surgery. However, I knew my underlying spine issues were significant and required surgical intervention.

    In terms of sleeping after surgery: while I was in the hospital I frequently changed my position. I would lay on my back for a while and then roll to my side every so often. Changing my position frequently was key to feeling good.

    BTW: watch out for the "Activity Police!"

    Justin Averna
    Founder & President, Spine Patient Society™
    www.SpinePatientSociety.org
    A 501(c)(3) Tax-Exempt Nonprofit & Charitable Organization

    • 1994: Football Injury, Severe Hyperextension
    • 1997: Snow Skiing Injury
    • 3/7/1997, 17 years old: Laminotomy L4/L5
    • 1999 & 2003: Motor Vehicle Accidents (not at fault both times) --> Grade V Annular Tears L4/L5 & L5/L6
    • 11/15/2003, 23 years old: 2-Level ProDisc® L4/L5 & L5/L6*, *lumbosacral transitional vertebra --> Dr. Rudolf Bertagnoli
    • 4/2008: 4.5 years pain-free before "new" leg pain
    • 5/14/2009, 29 years old: Dynamic Stabilization System L4/L5, Dr. Rudolf Bertagnoli
    I'm here to help.
    Questions? Suggestions? Need help with registering, creating a signature, etc.?
    justin (at) spinepatientsociety.org


    Disclosure: I have no financial relationships with any surgeons, spine clinics, device manufacturers, pharmaceutical companies, hospitals, etc. -- the SPS Board of Directors serve without compensation.

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