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Lumbar L4/L5 ADR, Lumbar L5/S1 ADR/ALIF

This is a discussion on Lumbar L4/L5 ADR, Lumbar L5/S1 ADR/ALIF within the Surgical Outcomes forums, part of the Spine Surgery Forums category; Runagain, you are processing this whole thing as best as can be expected. Pain just sucks. Increased pain really sucks. ...

  1. #21
    Moderator Cindylou's Avatar
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    Runagain, you are processing this whole thing as best as can be expected. Pain just sucks. Increased pain really sucks. Having surgery and still having pain sucks even more. Needing additional surgery to undo or redo a prior surgery sucks the most. No one gets it as much as we do. Keep plugging away. I can only hope and pray that incredible pain free days are in your future. Never give up!
    • January 2000 MVA passenger, used jaws of life to retrieve me, neck injury and months of PT
    • June 2001 Bicycle accident, 2 compression fractures at T12/L1, Vertebroplasty Sept. 2001
    • April 2006 right hip, labral tear and repair
    • April 2007 3 level ProDisc @ L3/4, L4/5 & L5/6✷ ✷Lumbosacral transitional vertebra; Dr. Rudolph Bertagnoli
    • July 2, 2008 ALIF & Laminectomy @ L6/S1
    • July 30, 2008 re-opened 28 days later to remove bone cement that had leaked onto S1 nerve root
    • August 2008 Pulmonary embolism, double pneumonia, collapsed left lung, re-hospitalized 1 week
    • March 10, 2009 Right SI Joint Fusion
    • April 27, 2010 2nd right hip arthroscopy to remove adhesions and release psoas muscle
    • September 30, 2010 lumbar facet rhizotomy
    • December 9, 2010 12 bilateral lumbar trigger point and steroid injections
    • December 23, 2010 12 more bilateral trigger point injections w/o steroid
    • February 15, 2011 ESI bilaterally in lower lumbar...relief only for few days. Considering 1 more.
    Did Spinal Cord Stimulator trial from 5/11/11-5/17/11 with excellent results; Spinal Cord Stimulator surgery is Monday,
    July 18, 2011

  2. #22
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    Default Hi guys

    Hey KBear and Cindylou,

    Thanks. I often wonder how things could go so bad so quickly. There are other things I have to deal with now that if you had told me in 2006, these things would happen to me, I would have laughed.
    It's been two years and nearly two months since my world as I knew it started to unwind.
    I don't work, I can't really exercise, but at least I don't lie around all day, but some days I do. And I have gained anywhere from 35-40 pounds and I fluctuate as much as 10 pounds within 2 weeks, sometimes one week. I blame that on the Gabapentin, which has bad side effects but helps sciatica so much that in this state, I could not stop taking it. I would go crazy with the non-Gabapentined sciatica.
    I tried and it does not work.
    At least the disc I did have work on, is happy.
    It is just the L5/S1 one, I have to deal with.
    I hope in the near future, I will get the artificial disc at L5/S1 and then I will have two happy discs.

    I did see my pain doc today and he raised my pain medication again and I'll have to see if that helps. At least he is willing to keep me comfortable until I have surgery.
    I have a new problem that started Tuesday night and I hope it is just due to the hot temperatures (80's) in my area this week. My feet, ankles and legs have swollen up and I have what in medical talk is pitting edema. This is where you push into the skin at the ankle and the foot and the impression from your finger stays as a pit. I am getting it checked out tomorrow to make sure things are kosher.

    God does work in mysterious ways. I know I could end this today by agreeing to have fusion but it doesn't seem right and I can't say why i feel this way but it is a gut feeling.
    Besides I would miss a lovely insurance appeal process.
    Who wouldn't miss that?
    KBear, i remember when you were in the other trial and you were dropped, but you hung in there and got the surgery elsewhere. And Cindylou, they could practicially write a medical textbook about you. I hope both of you are feeling better each day.:thumpup::thumpup:

    ffffffffffffffffffffffffffnnnnnnnn....whoops, fell asleep temporarily. Side effect of the happy meds. Kind of looks decorative.

    Bye. I think I need to catch some zzzzzzzzzzzzzzzzzzzzzzz's.
    DDD or DJD
    ADR recepient.
    Mother of four, advocate and insurance fighter.

  3. #23
    Moderator KBear's Avatar
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    Glad you are able to keep looking forward, it will happen, not according to our time; but according to God's.
    31 years old-
    1/06- In wreck with 18 wheeler at 25 years old; 6/06- Head on collision on Interstate, both wrecks other drivers fault. Numerous MRI's, PT, chiropractic, acupuncture, TENS therapy, massage therapy, facet injections, epidural injections, Nerve study, Discogram, confirms pain in L4/5, IDET, decompression, Bi-lateral neurotomy L3/4/5, denied by insurance twice, in Active L clinical trial, had surgery March 17, 2009 in Miami, FL- received Active L disc at 29 years old. Pain and medication free as of October 2010!
    Mommy to Emma- 8 years, Ava- 5.5 years & had baby Eli after ADR, via c-section on March 25, 2011 , completely pain free still!

  4. #24
    Senior Member ajj1001's Avatar
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    Default weight gain

    Quote Originally Posted by runagain View Post
    And I have gained anywhere from 35-40 pounds and I fluctuate as much as 10 pounds within 2 weeks, sometimes one week. I blame that on the Gabapentin, which has bad side effects but helps sciatica so much that in this state, I could not stop taking it. I would go crazy with the non-Gabapentined sciatica.
    n


    Snap, good drug but hate being heavier. I've been on it for 18 months and would love to go off it but thats not an option.

    Hope your ankles, legs improve and that everything checks out ok.
    Alison 46 year old female
    2011 Aug PLIF L4/L5 - L5/S1 both adr in situ
    2010 May - Discogram on L2/L3 & L3/L4, neither pain generators
    2009 May - Failed revision fusion on L5/S1 with Charite ADR in situ
    2008 Caudal epidural exacerbated nerve symptoms. Prolapse L2/L3
    2007 L5/S1 Facet deterioration
    Brilliant 5 years, no pain only minor motor problems and residual nerve damage
    2002 March - ADR Charite - L4/5, L5/S1
    2000 Disc prolapses L4/5, L5/S1

  5. #25
    Founder / Administrator Justin's Avatar
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    runagain,

    Did you get the pitting edema worked up? Please let us know how it goes with your GP.

    Justin Averna
    Founder & President, Spine Patient Society™
    www.SpinePatientSociety.org
    A 501(c)(3) Tax-Exempt Nonprofit & Charitable Organization

    • 1994: Football Injury, Severe Hyperextension
    • 1997: Snow Skiing Injury
    • 3/7/1997, 17 years old: Laminotomy L4/L5
    • 1999 & 2003: Motor Vehicle Accidents (not at fault both times) --> Grade V Annular Tears L4/L5 & L5/L6
    • 11/15/2003, 23 years old: 2-Level ProDisc® L4/L5 & L5/L6*, *lumbosacral transitional vertebra --> Dr. Rudolf Bertagnoli
    • 4/2008: 4.5 years pain-free before "new" leg pain
    • 5/14/2009, 29 years old: Dynamic Stabilization System L4/L5, Dr. Rudolf Bertagnoli
    I'm here to help.
    Questions? Suggestions? Need help with registering, creating a signature, etc.?
    justin (at) spinepatientsociety.org


    Disclosure: I have no financial relationships with any surgeons, spine clinics, device manufacturers, pharmaceutical companies, hospitals, etc. -- the SPS Board of Directors serve without compensation.

  6. #26
    Moderator Cindylou's Avatar
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    Runagain, good to hear from you. I'm glad your pain meds have been adjusted accordingly. I'm glad you are hanging in there, even if it is by your fingernails. And love the sense of humor, which is vital to keep all of us from jumping off the proverbial cliff. The weight gain can be quite depressing in and of itself. While I'm not moving as much right now too, I try to eat more small meals and snacks during the day. Healthy ones. Although I too have put on some poundage, it's not as bad as it could be, I believe because of my increased fruits, veggies and nuts. But sometimes the drugs just puff you up no matter what. God bless.
    • January 2000 MVA passenger, used jaws of life to retrieve me, neck injury and months of PT
    • June 2001 Bicycle accident, 2 compression fractures at T12/L1, Vertebroplasty Sept. 2001
    • April 2006 right hip, labral tear and repair
    • April 2007 3 level ProDisc @ L3/4, L4/5 & L5/6✷ ✷Lumbosacral transitional vertebra; Dr. Rudolph Bertagnoli
    • July 2, 2008 ALIF & Laminectomy @ L6/S1
    • July 30, 2008 re-opened 28 days later to remove bone cement that had leaked onto S1 nerve root
    • August 2008 Pulmonary embolism, double pneumonia, collapsed left lung, re-hospitalized 1 week
    • March 10, 2009 Right SI Joint Fusion
    • April 27, 2010 2nd right hip arthroscopy to remove adhesions and release psoas muscle
    • September 30, 2010 lumbar facet rhizotomy
    • December 9, 2010 12 bilateral lumbar trigger point and steroid injections
    • December 23, 2010 12 more bilateral trigger point injections w/o steroid
    • February 15, 2011 ESI bilaterally in lower lumbar...relief only for few days. Considering 1 more.
    Did Spinal Cord Stimulator trial from 5/11/11-5/17/11 with excellent results; Spinal Cord Stimulator surgery is Monday,
    July 18, 2011

  7. #27
    Senior Member treefrog's Avatar
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    What a difficult time for you. I am so sorry for the surgical delay, the extra pain, and the insurance fight. Dealing with anyone of these things is stressful enough, but to have to deal with everything, I feel for you. I really hope things work out for you soon.
    Cathy

    DDD
    L4/5; L5/6(S1) pain generators
    Two-level ADR with Dr. Bertagnoli May 26, 2009
    Prodisc-L

    SUCCESS!!

  8. #28
    Founder / Administrator Justin's Avatar
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    Quote Originally Posted by treefrog View Post
    What a difficult time for you. I am so sorry for the surgical delay, the extra pain, and the insurance fight. Dealing with anyone of these things is stressful enough, but to have to deal with everything, I feel for you. I really hope things work out for you soon.
    Well said!

    Justin Averna
    Founder & President, Spine Patient Society™
    www.SpinePatientSociety.org
    A 501(c)(3) Tax-Exempt Nonprofit & Charitable Organization

    • 1994: Football Injury, Severe Hyperextension
    • 1997: Snow Skiing Injury
    • 3/7/1997, 17 years old: Laminotomy L4/L5
    • 1999 & 2003: Motor Vehicle Accidents (not at fault both times) --> Grade V Annular Tears L4/L5 & L5/L6
    • 11/15/2003, 23 years old: 2-Level ProDisc® L4/L5 & L5/L6*, *lumbosacral transitional vertebra --> Dr. Rudolf Bertagnoli
    • 4/2008: 4.5 years pain-free before "new" leg pain
    • 5/14/2009, 29 years old: Dynamic Stabilization System L4/L5, Dr. Rudolf Bertagnoli
    I'm here to help.
    Questions? Suggestions? Need help with registering, creating a signature, etc.?
    justin (at) spinepatientsociety.org


    Disclosure: I have no financial relationships with any surgeons, spine clinics, device manufacturers, pharmaceutical companies, hospitals, etc. -- the SPS Board of Directors serve without compensation.

  9. #29
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    Hi everyone,

    I did reschedule surgery and this time I am not postponing unless something dire happens or the docs change the date.
    Tentatively, getting surgery done before end of the year.
    I am flexible but I am really bent now almost to the breaking point.

    My swelling went down after 10 days of a diuretic. I just have the usual Gabapentin swelling. I'd like to get off that drug, too, but unfortunately, that is not an option now.

    Even with increase of meds, I am still having breakthrough pain, but am taking my max pain dose and medicating with some ice. Since last night, it is all concentrated on my left side. I cannot think of anything i did to aggravate things, but they are aggravated.

    I am asking again: drum roll: Does anyone have any precedent of having ADR surgery done? Blue Cross or any insurances? I need more precedent ASAP.

    Can send me anything confidential. I will not devulge my sources unless they want me to.

    Runagain
    DDD or DJD
    ADR recepient.
    Mother of four, advocate and insurance fighter.

  10. #30
    Founder / Administrator Justin's Avatar
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    Runagain,

    I'm glad to hear that you rescheduled your surgery. I hope the pain and swelling continue to get better.

    Let me know if you need anything.

    Justin Averna
    Founder & President, Spine Patient Society™
    www.SpinePatientSociety.org
    A 501(c)(3) Tax-Exempt Nonprofit & Charitable Organization

    • 1994: Football Injury, Severe Hyperextension
    • 1997: Snow Skiing Injury
    • 3/7/1997, 17 years old: Laminotomy L4/L5
    • 1999 & 2003: Motor Vehicle Accidents (not at fault both times) --> Grade V Annular Tears L4/L5 & L5/L6
    • 11/15/2003, 23 years old: 2-Level ProDisc® L4/L5 & L5/L6*, *lumbosacral transitional vertebra --> Dr. Rudolf Bertagnoli
    • 4/2008: 4.5 years pain-free before "new" leg pain
    • 5/14/2009, 29 years old: Dynamic Stabilization System L4/L5, Dr. Rudolf Bertagnoli
    I'm here to help.
    Questions? Suggestions? Need help with registering, creating a signature, etc.?
    justin (at) spinepatientsociety.org


    Disclosure: I have no financial relationships with any surgeons, spine clinics, device manufacturers, pharmaceutical companies, hospitals, etc. -- the SPS Board of Directors serve without compensation.

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