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New Member, New Post Op Fusion (Two Level Lumbar Fusion)

This is a discussion on New Member, New Post Op Fusion (Two Level Lumbar Fusion) within the Surgical Outcomes forums, part of the Spine Surgery Forums category; Hello, I was recently told about this site by a friend. I am three months out of a two level ...

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    Bug New Member, New Post Op Fusion (Two Level Lumbar Fusion)

    Hello, I was recently told about this site by a friend.

    I am three months out of a two level lumbar fusion. Years ago I had an accident which left me with annular tears, chemically sensitive disc, DDD and a few other things. I am also a cancer survivor three years ago.

    The biggest problem I had before besides pain was this thing called a "chemically sensitive disc". It is now gone since the fusion.

    This recovery is pretty rough...as any one who's done this knows. I feel like I am either overdoing it or underdoing it. Next week I'll see the doc for my second set of X-Rays. The last two weeks have been a nightmare. It seems either I do next to nothing and can keep pain level to a minimal but the minute I try to do something (laundry, etc.) I hurt myself.

    It's seriously frustrating but of course you know that. I wanted to join to find out how other people are doing with this surgery and if I can help anyone in making the decision. I have no regrets so far but it's rough going and it would help me greatly to know others going through similar. Thanks and I'm looking forward to being here.

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    Founder / Administrator Justin's Avatar
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    Default re: New Member, New Post Op Fusion (Two Level Lumbar Fusion)

    dridobits,

    Welcome to the Spine Patient Society!

    Congratulations on being a Survivor! That is absolutely wonderful to hear. You are still very early post-op at only three months out from a fusion operation. I understand your frustration all too way. It's one step forward, two steps back. There really is no "linear" healing where things just fall in place, as you know. However, the good days truly start out numbering the bad days as you continue to heal.

    What levels was your lumbar fusion? Feel free to add a signature to your profile (go to "User Profile" at the top of the Forum).

    Once again, welcome and I hope we can support you along the way!

    Justin Averna
    Founder & President, Spine Patient Society™
    www.SpinePatientSociety.org
    A 501(c)(3) Tax-Exempt Nonprofit & Charitable Organization


    • 1994: Football Injury, Severe Hyperextension
    • 1997: Snow Skiing Injury
    • 3/7/1997: Laminotomy L4/L5
    • 1999 & 2003: Motor Vehicle Accidents (not at fault both times) --> Grade V Annular Tears L4/L5 & L5/L6
    • 11/15/2003: 2-Level ProDisc® L4/L5 & L5/L6*, *lumbosacral transitional vertebra --> Dr. Rudolf Bertagnoli
    • 4/2008: 4.5 years pain-free before "new" leg pain
    • 5/14/2009: Dynamic Stabilization System L4/L5, Dr. Rudolf Bertagnoli
    I'm here to help.
    Questions? Suggestions? Need help with registering, creating a signature, etc.?
    justin (at) spinepatientsociety.org


    Disclosure: I have no financial relationships with any surgeons, spine clinics, device manufacturers, pharmaceutical companies, hospitals, etc. -- the SPS Board of Directors serve without compensation.

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    Default Re: New Member, New Post Op Fusion (Two Level Lumbar Fusion)

    Dear Dridobits,
    Hello! I also want to welcome you to the website. The only thing I can tell you is about my friend. She recently had a one-level lumbar fusion. You are describing her EXACTLY. I can only hope that encourages you to know what you are feeling is very common and quite the norm. Keep on hanging in there. You are strong beyond measure!
    CD
    44 year old female
    LBP for more than three years
    DDD at L4/L5
    annular tears and bulge
    PT, ESI, chiropractic, massage -unsuccessful
    MRI & discography July 2009-positive @ L4/L5
    3 denials from UHC
    Enrolled in Axiomed Freedom Lumbar Trial
    Freedom disc @ L4/L5 by Dr. Zigler on 2/18/10

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    Senior Member Katie's Avatar
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    Default Re: New Member, New Post Op Fusion (Two Level Lumbar Fusion)

    I hope to be going through exactly the same thing in a few months, if that's any help By then you should be through all of the nasty stuff, and will be there to hold my hand.

    Hang in there. As others have said, this is probably very normal and early in your recovery period. I can only go on their stories too so far, but have heard it so often that I have to trust them.

    Again, welcome aboard!
    Severe compression of spinal cord, flaval ligament, etc. at C4/5 & 5/6.
    Herniation and compression, at L3/4 to L5/S1 plus spondylosis at the latter level. Severe allergy to most metals.
    Three level surgery in Brazil with Dr. Luiz Pimenta on March 17/2010 using non-metal appliances. L5/S1-PEEK cage, ALIF; L4/5-PEEK cage, XLIF; C5/6-NuVasive NeoDisc. Three separate approaches, two minimally invasive. Currently minor residual back pain, from SI ligament and still overdoing things . Therapy and chiropractic treatments helping immensely. Gone from being almost bedridden to near normal activities including gardening. Life is gooooood!

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    Senior Member ajj1001's Avatar
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    Default Re: New Member, New Post Op Fusion (Two Level Lumbar Fusion)

    Quote Originally Posted by dridobits View Post
    This recovery is pretty rough...as any one who's done this knows. I feel like I am either overdoing it or underdoing it. Next week I'll see the doc for my second set of X-Rays. The last two weeks have been a nightmare. It seems either I do next to nothing and can keep pain level to a minimal but the minute I try to do something (laundry, etc.) I hurt myself.

    It's seriously frustrating but of course you know that. I wanted to join to find out how other people are doing with this surgery and if I can help anyone in making the decision. I have no regrets so far but it's rough going and it would help me greatly to know others going through similar. Thanks and I'm looking forward to being here.
    Hiya, I'm 8 months post op from a one level posterolateral fusion on a previously operated on disc. I've possibly got other stuff going on at higher levels but am awaiting further tests. Learning to pace yourself is the hardest but most important thing to get right. I still don't manage it all the time. I don't do any jobs that involve lifting such as laundry or shopping.

    Hope your x rays are good, its still early days. My last lot in December showed that fusion hadn't taken place, there was some bone forming on the right hand side but where I had most messed about with on the left isn't behaving yet.

    alison x
    Alison 46 year old female
    2012 Doing Rehab
    2011 Sept 3rd Op Removal of old instrumentation and PLIF L4/L5 - L5/S1 both adr in situ
    2010 May Discogram on L2/L3 & L3/L4
    2009 May 2nd Op Failed revision fusion on L5/S1 with Charite ADR in situ
    2008 Caudal epidural exacerbated nerve symptoms. Prolapse L2/L3
    2007 L5/S1 Facet deterioration
    2002 March 1st Op ADR Charite - L4/5, L5/S1
    2000 Disc prolapses L4/5, L5/S1

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    Moderator Cindylou's Avatar
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    Default Re: New Member, New Post Op Fusion (Two Level Lumbar Fusion)

    Dridobits, welcome to SPS! Glad you found us. Sorry for the circumstances that led you hear, but still glad that you found us. I have had two separate fusions, and 3 lumbar adr's. I do have to agree with everyone that the fusions are very slow going in recovery, just like the adr's. It's a roller coaster recovery, no doubt, which can be very frustrating. You especially need to take it slow so your fusion can heal properly. I hope you are following the no bending, twisting, etc. My Grandma used to say "getting old is not for the weary." I like to add "fusion recovery is not for the weary." (or substitute adr) And that is where we come in, because no one should have to go through these surgeries or recoveries without the proper support and encouragement. So again, and I hope you will tap into us for continued support. :thumpup:
    • January 2000 MVA passenger, used jaws of life to retrieve me, neck injury and months of PT
    • June 2001 Bicycle accident, 2 compression fractures at T12/L1, Vertebroplasty Sept. 2001
    • April 2006 right hip, labral tear and repair
    • April 2007 3 level ProDisc @ L3/4, L4/5 & L5/6✷ ✷Lumbosacral transitional vertebra; Dr. Rudolph Bertagnoli
    • July 2, 2008 ALIF & Laminectomy @ L6/S1
    • July 30, 2008 re-opened 28 days later to remove bone cement that had leaked onto S1 nerve root
    • August 2008 Pulmonary embolism, double pneumonia, collapsed left lung, re-hospitalized 1 week
    • March 10, 2009 Right SI Joint Fusion
    • April 27, 2010 2nd right hip arthroscopy to remove adhesions and release psoas muscle
    • September 30, 2010 lumbar facet rhizotomy
    • December 9, 2010 12 bilateral lumbar trigger point and steroid injections
    • December 23, 2010 12 more bilateral trigger point injections w/o steroid
    • February 15, 2011 ESI bilaterally in lower lumbar...relief only for few days. Considering 1 more.
    Did Spinal Cord Stimulator trial from 5/11/11-5/17/11 with excellent results; Spinal Cord Stimulator surgery is Monday,
    July 18, 2011

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    Senior Member Jack-of-all-trades's Avatar
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    Default Re: New Member, New Post Op Fusion (Two Level Lumbar Fusion)

    I am with you 100%. I am also so glade you took the time to post here.

    I am now 11 days out from posterior lumbar fusion myself and can sympathize with your position. Yesterday was the first day since I have been home that the temperature outside has been above freezing. I took the opportunity to walk as I was told this is one of the best activities to do post-op. My dog and I enjoyed the 0.8 mile walk but I can tell it today. I use to run 10X that distance and after working all day. This is the first time since I had mono 40 years ago that I have to sit around doing nothing and am not happy.

    The worst for me is when I get up in the morning, usually after only 5-6 hours sleep. As the day progresses, and my pain meds kick in, things get better. Something else, that old wives tale about weather and pain seems to be true as I do notice a difference when we have a high pressure cold front come through. Maybe part of recovery should be a cruise someplace warm.
    Low back pain became somewhat dehabilitating in 2005
    Have had 11 steroid injections, IDET, Trial for nerve stimulator, PT, chiropractic trial, practically every med known to mankind. Discogram indicated three diseased levels with L5-S1 being the most likely pain generator. Post minimally invasive PLIF with internal fixation (titanium) on 12-28-09 of L5-S1. Doing better than expected. Last opioid 7/9/10. Five months pain free, then my neck turned against me. MRI on 12/1/10-- disease at C2 to C7. Only surgical alternative is to fuse entire C-spine. Diagnosed now with Aggressive Relapsing-Remitting Multiple Sclerosis with cord & brainstem active lesions

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    Senior Member Carmen's Avatar
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    Sad Re: New Member, New Post Op Fusion (Two Level Lumbar Fusion)

    Quote Originally Posted by scduggan View Post
    Dear Dridobits,
    Hello! I also want to welcome you to the website. The only thing I can tell you is about my friend. She recently had a one-level lumbar fusion. You are describing her EXACTLY. I can only hope that encourages you to know what you are feeling is very common and quite the norm. Keep on hanging in there. You are strong beyond measure!
    CD
    Welcome to what will keep up all normal when we l find that you are not the only one feeling this way. What I can't help thinking is that if some people have had problems with from one to two level fusion, what will happen to someone that will be having from 5-6 level fusion. Carmen
    • Scoliosis and multilevel severe degeneration of the intervertebral disks
    • Marked multilevel facet arthrosis
    • Fusion of the L5 and S1 vertebrae
    • Grade 1 spondylolisthesis at L4-L5 and L5 and S1
    • Slight antherolisthesis at L3-4
    • Multilevel asymmetrical neuroforaminal narrowing

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    Senior Member Dave's Avatar
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    Default Re: New Member, New Post Op Fusion (Two Level Lumbar Fusion)

    Glad you "transferred" over to this site. These are awesome folks who will always want to support you.
    Dave

    Diagnosed with DDD in Nov, 2007. MRI, EMG
    C3/4 C4/5 C5/6 C6/7
    Surgery 06.04.08--C5/6 and C6/7 w/Prodisc
    C4/5 deterioration progressing quickly
    MRI on lumbar shows disc herniation at L5/S1, stenosis at L3/4, L4/5, spondylosis and DDD at L2 through S1 in July, 2009
    Nerve Root, Facet Injections and Epidural every 3 months. Ongoing treatment for continued degeneration.


  10. #10
    Senior Member Katie's Avatar
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    Default Re: New Member, New Post Op Fusion (Two Level Lumbar Fusion)

    Carmen, I understand your worry...I'm in a similar boat. While I hopefully will only have one or two levels fused out of five, that thought runs through my mind a lot.

    But all I can do is think of the end results, why I am going through all of this in the first place, and have faith that it will be worth it...sort of like having children. And they last a lot, lot longer
    Severe compression of spinal cord, flaval ligament, etc. at C4/5 & 5/6.
    Herniation and compression, at L3/4 to L5/S1 plus spondylosis at the latter level. Severe allergy to most metals.
    Three level surgery in Brazil with Dr. Luiz Pimenta on March 17/2010 using non-metal appliances. L5/S1-PEEK cage, ALIF; L4/5-PEEK cage, XLIF; C5/6-NuVasive NeoDisc. Three separate approaches, two minimally invasive. Currently minor residual back pain, from SI ligament and still overdoing things . Therapy and chiropractic treatments helping immensely. Gone from being almost bedridden to near normal activities including gardening. Life is gooooood!

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